Amanda’s Epilepsy Journey
Diagnosis and year of diagnosis I was diagnosed with epilepsy in 2000, and I have been living with epilepsy for more than 26 years. My journey has included countless seizures,…
Continue Reading
Amanda’s Epilepsy Journey
The Grief No One Warned Me About
Sixteen years ago, when my daughter was diagnosed with a rare autoimmune disease, I knew I was scared. I knew I was overwhelmed. I knew I was stressed. What I…
Continue Reading
The Grief No One Warned Me About
Meet Asher: One Little Boy, One Rare Genetic Condition, and a World of Possibilities
At just two years old, Asher is already teaching us that the smallest milestones can be the biggest victories. Our son, Asher, was born on February 10, 2024. He's a…
Continue Reading
Meet Asher: One Little Boy, One Rare Genetic Condition, and a World of Possibilities
More Than a Diagnosis: Jonas, ECHS1D, and a Mother’s Search for Hope
When there is no treatment for your child's rare disease, how do you find a way forward? For one mother in the Czech Republic, the answer was to start asking…
Continue Reading
More Than a Diagnosis: Jonas, ECHS1D, and a Mother’s Search for Hope
Pancreatic Cancer Action Network: FDA Approval of Daraxonrasib
A Chicago cancer conference this summer revealed an astounding development – a recent clinical trial of a new therapy, Daraxonrasib, was nearly doubling survival rates for late-stage pancreatic cancer patients.…
Continue Reading
Pancreatic Cancer Action Network: FDA Approval of Daraxonrasib
The Unknown of It All
Editor's Note: Patient Worthy is honored to share this story from our friends at Elephants & Tea. Originally written by Mellory Torres, a survivor of acute lymphocytic leukemia, the article…
Continue Reading
The Unknown of It All
Suffering and Faith
Editor's Note: Patient Worthy is honored to present this story, originally written by Blyth Lord, founder of Courageous Parents Network. I was asked earlier this week by a high school…
Continue Reading
Suffering and Faith
El cáncer de hígado y las comunidades hispana y afrodescendiente en Estados Unidos
Nota del editor: Para Patient Worthy es un honor compartir este artículo, que nos fue enviado originalmente por Andrés Contreras. El cáncer de hígado es la tercera causa de muerte…
Continue Reading
El cáncer de hígado y las comunidades hispana y afrodescendiente en Estados Unidos
Liver Cancer and the Hispanic and Black Communities in the United States
Editor's Note: Patient Worthy is honored to share this article, originally submitted to us by Andrés Contreras. Liver cancer is the third leading cause of cancer death worldwide. In the…
Continue Reading
Liver Cancer and the Hispanic and Black Communities in the United States
More Than 50 Surgeries and Still Becoming
My name is Kelli Frederick, M.A., and I have lived with neurofibromatosis for my entire life. I have also undergone more than 50 facial surgeries. When you live with a…
Continue Reading
More Than 50 Surgeries and Still Becoming
Make-A-Wish Side Effect
Editor's Note: Patient Worthy is honored to share this story from our friends at Elephants & Tea. To see the article, originally written by Natalia Collings, in its original format,…
Continue Reading
Make-A-Wish Side Effect
When Nothing Hurts: Why Advocating for Your Own Health Matters
Editor's Note: The following article was submitted to Patient Worthy by Regina Portnoy. “Nothing hurts. I feel fine. Why would I need to see a doctor?” Throughout my career, I…
Continue Reading
When Nothing Hurts: Why Advocating for Your Own Health Matters
Becoming the Patient: How Lung Cancer Changed My Life, My Purpose, and My Voice
Editor's Note: Patient Worthy is honored to share this patient story, submitted to us by Shelly Glenn. For most of my career, I worked on the other side of cancer.…
Continue Reading
Becoming the Patient: How Lung Cancer Changed My Life, My Purpose, and My Voice
Jon’s Epilepsy-Caregiver Story
Editor's Note: Patient Worthy is honored to share the following caregiver story, submitted to us by Jon Scheinman of The Epilepsy Foundation. To see the article in its original format,…
Continue Reading
Jon’s Epilepsy-Caregiver Story
Vanessa’s Acoustic Neuroma Story
There are parts of 2024 that I know only through photographs and the stories my sister has told me. In some of the pictures, I am lying in a hospital…
Continue Reading
Vanessa’s Acoustic Neuroma Story
How One XLH Diagnosis Sparked Conversations Across Three Generations
Editor's Note: Patient Worthy is pleased to share this story, submitted to us by Connie B. What if one diagnosis could change the way an entire family understands its past,…
Continue Reading
How One XLH Diagnosis Sparked Conversations Across Three Generations
Body Bound by Earth, Mind Master of the Cosmos: My Journey with LGMD2R
My name is A. Sabesan. I am 25 years old, living in Chennai, Tamil Nadu, India. Up until the age of 18, my life was completely ordinary. But at 19,…
Continue Reading
Body Bound by Earth, Mind Master of the Cosmos: My Journey with LGMD2R
Becky’s Journey with Metastatic Colon Cancer
I’ve survived Stage 4 colon cancer for about 10 years. I went to the doctor for a routine colonoscopy. They said I had a long colon, and they could get…
Continue Reading
Becky’s Journey with Metastatic Colon Cancer
I Live With LGMD. I Want Patients to Help Shape What Comes Next.
When I was seven, my parents were trying to understand why I was becoming ill. I spent time in hospitals and underwent painful muscle biopsies. Doctors knew I had a…
Continue Reading
I Live With LGMD. I Want Patients to Help Shape What Comes Next.
My Big Sister
Editor's Note: Patient Worthy is honored to present this story, shared with us by our friends at the Courageous Parents Network. Originally written by Dr. Adebimpe Adewusi, the article can…
Continue Reading
My Big Sister
Myth Buster: You Don’t Need a High Protein Diet
Editor's Note: Patient Worthy is honored to share this article from our friend Julie Lanford, MPH, RD, CSO, LDN – a.k.a. The Cancer Dietitian. To see this article in its…
Continue Reading
Myth Buster: You Don’t Need a High Protein Diet
The Weight of Thank You
Editor's Note: Patient Worthy is honored to share the following story from our friends at Elephants & Tea, originally written by Michelle Lawrence, a patient living with Chronic Lymphocytic Leukemia…
Continue Reading
The Weight of Thank You
Perpetually Healing
Editor's Note: Patient Worthy is proud to share the following story from our friends at Elephants & Tea, originally written by Dillon Groover, a brain cancer survivor. To see the…
Continue Reading
Perpetually Healing
Barb’s Fight Against Stage 4 Lymphoma
In June 2024, I went to the emergency room because the “flu” I’d been diagnosed with a week earlier had turned into abdominal pain that didn’t feel right. After a…
Continue Reading
Barb’s Fight Against Stage 4 Lymphoma
A Routine Colonoscopy at 44 Revealed Cancer – Now She’s Raising Awareness
I thought I wanted a second baby. My son was an adult, and despite having an adorable Frenchie, I was ready to take steps to get to the baby smell.…
Continue Reading
A Routine Colonoscopy at 44 Revealed Cancer – Now She’s Raising Awareness
- 1
- 2
- 3
- 4
- …
- 93
- Go to the next page
