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ADNP Syndrome

Home » ADNP Syndrome
$4M Put Towards Research for ADNP Syndrome Therapies
PublicDomainPictures / Pixabay

$4M Put Towards Research for ADNP Syndrome Therapies

  • Post author:Jessica Lynn
  • Post published:April 11, 2022
  • Post category:ADNP Syndrome

Currently, no approved therapies exist for ADNP syndrome, a rare genetic neurodevelopmental disorder. But a group of researchers from the UC Davis MIND Institute are working to change that. According…

Continue Reading $4M Put Towards Research for ADNP Syndrome Therapies
An Experimental Drug for Alzheimer’s is Being Tested to Treat Autism

An Experimental Drug for Alzheimer’s is Being Tested to Treat Autism

  • Post author:Rose Duesterwald
  • Post published:August 31, 2020
  • Post category:ADNP Syndrome/Alzheimer's disease without Neurofibrillary tangles/Rare Disease

Professor Illana Gozes and her team at Tel Aviv University recently developed NAP (CP201). It is an experimental drug that has been proven to be effective in the treatment of…

Continue Reading An Experimental Drug for Alzheimer’s is Being Tested to Treat Autism
Using AI to Further ADNP Syndrome Research
PublicDomainPictures / Pixabay

Using AI to Further ADNP Syndrome Research

  • Post author:Jessica Lynn
  • Post published:May 15, 2020
  • Post category:ADNP Syndrome/Rare Disease

It all began with an email in 2019. Matt Might, director of the Hugh Kaul Precision Medicine Institute, shot his thoughts over to neurosurgery resident Matt Davis, whose 3-year-old son…

Continue Reading Using AI to Further ADNP Syndrome Research
Determined Mother is Raising Awareness of Rare Genetic Disorder Linked to Autism
192635 / Pixabay

Determined Mother is Raising Awareness of Rare Genetic Disorder Linked to Autism

  • Post author:Patient Worthy Contributor
  • Post published:February 27, 2018
  • Post category:ADNP Syndrome

As an official Friend of Rare Disease Week, we are highlighting some of our heroes and rare disease warriors' stories. Below was submitted by the ADNP Kids Research Foundation and…

Continue Reading Determined Mother is Raising Awareness of Rare Genetic Disorder Linked to Autism
Mother’s Intuition Leads to Diagnosis and Hope for Child Battling ADNP
Source: Pixabay

Mother’s Intuition Leads to Diagnosis and Hope for Child Battling ADNP

  • Post author:Samuel Sachs
  • Post published:November 1, 2017
  • Post category:ADNP Syndrome

According to Global Genes' Rare Daily, Alexi’s mother always knew her child was different. It would take almost nine years to find the proper ADNP diagnosis, but Alexi’s mother never gave…

Continue Reading Mother’s Intuition Leads to Diagnosis and Hope for Child Battling ADNP

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