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Alexander disease

Home » Alexander disease
ICYMI: Two Professors Receive $74K Grant to Study Alexander Disease
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ICYMI: Two Professors Receive $74K Grant to Study Alexander Disease

  • Post author:Jessica Lynn
  • Post published:May 24, 2023
  • Post category:Alexander disease

First described in medical literature in 1949, Alexander disease is an extremely rare neurological disorder and form of leukodystrophy. Despite nearly 74 years having passed since its discovery, there is…

Continue Reading ICYMI: Two Professors Receive $74K Grant to Study Alexander Disease
ION373 Clinical Trial Initiated for Alexander Disease
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ION373 Clinical Trial Initiated for Alexander Disease

  • Post author:Jessica Lynn
  • Post published:April 21, 2021
  • Post category:Alexander disease/Leukodystrophy

In a recent press release, RNA-targeted therapeutics company Ionis Pharmaceuticals, Inc. ("Ionis") shared the initiation of a Phase 2/3 clinical trial evaluating ION373 for patients with Alexander disease (AxD). Currently,…

Continue Reading ION373 Clinical Trial Initiated for Alexander Disease
Community Celebrates 18th Birthday for Alexander Disease Patient
source: pixabay.com

Community Celebrates 18th Birthday for Alexander Disease Patient

  • Post author:James Moore
  • Post published:April 21, 2020
  • Post category:Alexander disease/Leukodystrophy/Rare Disease

According to a story from koco.com, the community of Ada, Oklahoma, recently held a birthday celebration for a local affected by Alexander disease. Hunter Goodwin recently turned 18 years old,…

Continue Reading Community Celebrates 18th Birthday for Alexander Disease Patient

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