CHARGE syndrome Archives - Patient Worthy

source: pixabay.com

Super Cooper Battles Rare CHARGE Syndrome With His Family By His Side

Allison McElvin had a healthy pregnancy and all of her ultrasounds went well, so no one suspected anything about her little baby Cooper. Even when she had little Cooper…

How Anabelle Succeeds Despite CHARGE Syndrome Will Bring You Joy

One in 10,000 babies is affected by CHARGE Syndrome. Anabelle is one of them. According to doctors, Anabelle should be deaf and blind. She should need to be fed through…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

SIGN UP FOR OUR NEWSLETTER
Email Address

Let’s Work Together!

Keep Up to Date

Learn More