CHARGE syndrome Archives - Patient Worthy

Raising a Daughter with CHARGE Syndrome: Jessica Lechuga’s Story

Post author:Jessica Lynn
Post published:May 8, 2020
Post category:CHARGE syndrome Rare Disease
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According to UIC Today, Jessica Lechuga became immersed within the rare disease community when she was still a teenager. That's because, at age 17, Jessica gave birth to her daughter…

source: pixabay.com

Super Cooper Battles Rare CHARGE Syndrome With His Family By His Side

Post author:Octavia Walker
Post published:September 14, 2018
Post category:CHARGE syndrome Rare Disease
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Allison McElvin had a healthy pregnancy and all of her ultrasounds went well, so no one suspected anything about her little baby Cooper. Even when she had little Cooper…

Source: Pixabay

How Anabelle Succeeds Despite CHARGE Syndrome Will Bring You Joy

Post author:Samuel Sachs
Post published:December 18, 2017
Post category:CHARGE syndrome
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One in 10,000 babies is affected by CHARGE Syndrome. Anabelle is one of them. According to doctors, Anabelle should be deaf and blind. She should need to be fed through…

Raising a Daughter with CHARGE Syndrome: Jessica Lechuga’s Story

Super Cooper Battles Rare CHARGE Syndrome With His Family By His Side

How Anabelle Succeeds Despite CHARGE Syndrome Will Bring You Joy

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