Osteoarthritis Medicine May Offer Hope for Butterfly Children with EBS-DM
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Osteoarthritis Medicine May Offer Hope for Butterfly Children with EBS-DM

Epidermolysis bullosa (EB) is a rare disorder, in which a genetic mutation disrupts the production of a protein that holds the skin together. This creates intense and painful blistering externally,…

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The Power of Connecting: It’s Better Than Vacation!

Have a rare disease? Have you ever been to a national patient conference? These are invaluable opportunities to connect with others who share your challenges and concerns! Imagine being in…

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