Teenager with Rare Disease Treks Across the Country with a Very Important Message

Gabriel Low, a 17-year-old from Hawaii, just completed a 3,000-mile bike ride across the country. He’s been riding since June 11th when he embarked from Seattle, WA to raise awareness,…

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Scientists Have Discovered a Mechanism Behind Hypokalemic Periodic Paralysis
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Scientists Have Discovered a Mechanism Behind Hypokalemic Periodic Paralysis

According to a story from sciencedaily.com, recent research has revealed the mechanism that causes hypokalemic periodic paralysis, a rare condition that causes patients to experience sudden, severe muscle weakness. The…

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A Physician Sees the Patient Perspective When Getting Treated For Primary Periodic Paralysis
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A Physician Sees the Patient Perspective When Getting Treated For Primary Periodic Paralysis

According to a story from Neurology Advisor, a retired physician experienced the challenges of being a rare disease patient first hand after being diagnosed with primary periodic paralysis thanks to…

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What You Need to Know About Primary Periodic Paralysis
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What You Need to Know About Primary Periodic Paralysis

1. Rare Neuromuscular Disease Primary periodic paralysis (PPP) is group of rare neuromuscular diseases characterized by disrupted communication between nerves cells and skeletal muscles. PPP is a result of failures…

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