Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most…
A small town Australian mayor was caught parking in a designated handicapped spot, and the mother of a rare disease girl is not having it. The event took place at…
Jodie Davies is no stranger to rare disease. When her daughter Tia was born with a genetic bone development disorder, she never could have expected her next child, Caleb, to…
Nine-year-old Giovanni Hamilton is a victim to one of the rarest diseases in the world but he won't let it define him. The rare condition is called Schwartz-Jampel syndrome (SJS)…
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