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Everylife Foundation and Global Genes’ RARE on the Road Virtual Rare Disease Leadership Tour

June 23 - June 24


RARE on the Road: a Virtual Rare Disease Leadership Tour

June 23rd-24th, 2020

The Virtual Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates, patients, and caregivers. Learn how to activate your local rare disease community. The tour is a unique opportunity to connect with other rare disease advocates and patients, discover ways to tell your story as someone affected by rare disease, and learn how you can help save lives and have a direct impact on public policy. This event will be held virtually online in light of the ongoing coronavirus/COVID-19 pandemic. June 23 will feature an interactive webinar of rare disease experts and leaders who will address a variety of subjects relevant to the rare disease community. June 24 will feature RARE Chats, which will be breakout discussion sessions categorized by state that will allow for community members and patients to network and collaborate.

To learn more about the event and sign up, click here.


June 23
June 24
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The EveryLife Foundation
Global Genes
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