Loading Events

« All Events

The Everylife Foundation for Rare Diseases and Global Genes’ RARE on the Road Rare Disease Leadership Tour

April 17 @ 8:30 am - 3:30 pm

RARE on the Road: a Rare Disease Leadership Tour

April 17th, 2020

Burlingame, CA

The Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates, patients, and caregivers. Learn how to activate your local rare disease community. The tour is a unique opportunity to connect with other rare disease advocates and patients, discover ways to tell your story as someone affected by rare disease, and learn how you can help save lives and have a direct impact on public policy.

To learn more about the event, click here. To register, click here.


April 17
8:30 am - 3:30 pm
Event Category:
Event Tags:
, , ,


The EveryLife Foundation
Global Genes


Hyatt Regency San Francisco Airport
Grand Peninsula D 1333 Old Bayshore Hwy
Burlingame, CA 94010 United States
+ Google Map
Close Menu