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Rare Alabama’s Rare Disease Advocacy Day
May 8 @ 8:00 am - 3:00 pm
Rare Disease Advocacy Day
May 8th, 2019
Are you a patient from Alabama? Well this is your opportunity to speak with lawmakers directly about your concerns and what you think they should do for the rare disease patient community.
Don’t know what to say? No worries. The day will start with advocacy training so that you will be able to communicate with your representatives as effectively as possible.
Registration is FREE. Lunch provided.