Rare Disease Advocacy Day May 8th, 2019 Are you a patient from Alabama? Well this is your opportunity to speak with lawmakers directly about your concerns and what you think…
Alabama Rare hosts the 3rd Rare Disease Day Advocacy Training & State House Advocacy Event in Montgomery, AL. It's a great way for advocates to get connected and meet state legislators.…
The Alabama Rare Disease community has come together to host a special week in honor of the upcoming date February 28th, 2018, which is now the official International Rare Disease…
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