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Alagille Syndrome Alliance

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Eighth Grader Ella Has Raised $5K for Alagille Syndrome Research and Support
source: pixabay.com

Eighth Grader Ella Has Raised $5K for Alagille Syndrome Research and Support

  • Post author:Jessica Lynn
  • Post published:August 14, 2023
  • Post category:Alagille Syndrome

For as long as she can remember, eighth-grader Ella Bork has held a keen knowledge of rare diseases, especially Alagille syndrome. Her mother, Cher, is actually the Executive Director of…

Continue Reading Eighth Grader Ella Has Raised $5K for Alagille Syndrome Research and Support

The Alagille Syndrome Alliance’s International Symposium

  • Post author:James Moore
  • Post published:June 20, 2019
  • Post category:

The International Symposium 2019 "Connecting The Pieces" Cincinnati, Ohio This will be the 8th International Symposium hosted by the Alagille Syndrome Alliance. This meeting is the largest gathering in the…

Continue Reading The Alagille Syndrome Alliance’s International Symposium

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