CF treatment – Patient Worthy

FDA Approved Trikafta: It Has the Potential to Benefit 90 Percent of Cystic Fibrosis Patients

Post author:Rose Duesterwald
Post published:November 6, 2019
Post category:Cystic Fibrosis

A recent article in the Washington Post tells the story of a newly-approved cystic fibrosis drug that represents thirty years of scientific work and dedication. The defective gene that causes cystic…

Source: Pixabay

Cystic Fibrosis and Video Games? How a New Technology Combines the Two

Post author:Octavia Walker
Post published:September 22, 2017
Post category:Cystic Fibrosis

Recently, in a new BBC documentary, a new innovative device was featured that offers a unique and engaging way for people with cystic fibrosis to handle one of the challenges…

Pixabay

Bottom Line: Clean Your Child’s Nebulizer. It’s Disgusting

Post author:PW Blogger
Post published:November 1, 2016
Post category:Cystic Fibrosis Rare Disease

Sometimes when a person has to fight the daily battles with chronic disease, some things just don't seem as important as others. Occasionally, patients with chronic disease are understandably focused…

Pixabay

Will This Exciting Research Inspire a Cure for CF?

Post author:EmpatheticBadass
Post published:May 12, 2016
Post category:Cystic Fibrosis Rare Disease

With apologies to the website of the same name, I effing LOVE science. I can’t do science but I love how it’s so incredibly complex that it regularly romps right…

FDA Approved Trikafta: It Has the Potential to Benefit 90 Percent of Cystic Fibrosis Patients

Cystic Fibrosis and Video Games? How a New Technology Combines the Two

Bottom Line: Clean Your Child’s Nebulizer. It’s Disgusting

Will This Exciting Research Inspire a Cure for CF?

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