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New UK Legislation to Prevent Seizure Drug from Harming Fetuses
Source: Pixabay

New UK Legislation to Prevent Seizure Drug from Harming Fetuses

  • Post author:Octavia Walker
  • Post published:May 16, 2018
  • Post category:Spina Bifida

Janet Williams was prescribed Epilim for seizures while she was pregnant. Now her two sons, Lee and Phillip, who are both in their twenties, have health issues related to the…

Continue Reading New UK Legislation to Prevent Seizure Drug from Harming Fetuses
Increasing Awareness Brings More Support for Rare Disease Patients
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Increasing Awareness Brings More Support for Rare Disease Patients

  • Post author:Patty
  • Post published:May 3, 2018
  • Post category:Epidermolysis Bullosa/Rare Disease

The National Center for Advancing Translational Sciences (NCATS) supports rare disease patients and their communities. They provide translational research funding, tools and other resources that are helping to address unique…

Continue Reading Increasing Awareness Brings More Support for Rare Disease Patients
Study Shortens MRA Scans For Patients With Claustrophobia
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Study Shortens MRA Scans For Patients With Claustrophobia

  • Post author:Meagan Fulps
  • Post published:March 7, 2018
  • Post category:Chronic Kidney Disease/Rare Disease

UCLA conducted a new study that looked at patients with claustrophobia and attempted a shortened MRA scan. They hoped to obtain the same quality of images that the current, longer…

Continue Reading Study Shortens MRA Scans For Patients With Claustrophobia
Bone Disease With Multiple Myeloma
Taokinesis / Pixabay

Bone Disease With Multiple Myeloma

  • Post author:Erin DiNapoli
  • Post published:February 23, 2018
  • Post category:Multiple Myeloma

Multiple myeloma is a cancer of the blood that develops in the plasma cells found in soft tissue at the center of the bone, called bone marrow. Bone disease is…

Continue Reading Bone Disease With Multiple Myeloma
The Treatment News Rheumatoid Arthritis Patients Have Been Waiting For
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The Treatment News Rheumatoid Arthritis Patients Have Been Waiting For

  • Post author:Patient Worthy Contributor
  • Post published:December 20, 2017
  • Post category:Rheumatoid Arthritis

If you've been waiting for a new rheumatoid arthritis treatment, good news is on the way! Rheumatoid arthritis is a chronic inflammatory condition that causes joint pain among other symptoms.…

Continue Reading The Treatment News Rheumatoid Arthritis Patients Have Been Waiting For
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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