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Why Skepticism is Key to Excellent Parenting

Why Skepticism is Key to Excellent Parenting

  • Post author:Patient Worthy Contributor
  • Post published:September 11, 2015
  • Post category:GLUT1 DS/Rare Disease

Sometimes a bit of skepticism is a good thing. RareConnect.org reports this was definitely true for Tina and Fernando when their sweet little boy, Nico, was diagnosed with epilepsy. At…

Continue Reading Why Skepticism is Key to Excellent Parenting

Fear, Frustration, Hope, Acceptance: 4 Struggles of a CVID Diagnosis

  • Post author:Patient Worthy Contributor
  • Post published:August 4, 2015
  • Post category:CVID/Primary Immunodeficiencies

Kathy Antilla recalls the moment she heard her son, Issac, say those words she thought she'd never hear: "Mom! Look at me! I'm just like a normal kid now." In…

Continue Reading Fear, Frustration, Hope, Acceptance: 4 Struggles of a CVID Diagnosis

Learn To Be Brave From This Inspiring HAE Millennial

  • Post author:Rebekah
  • Post published:June 18, 2015
  • Post category:HAE/Rare Disease

Amanda struggled for years to understand the pain and swelling that she kept experiencing. Her doctors couldn't figure out was wrong and she never knew why her throat would sometimes…

Continue Reading Learn To Be Brave From This Inspiring HAE Millennial
A.S.-Rare and Tricky to Diagnose

A.S.-Rare and Tricky to Diagnose

  • Post author:Patient Worthy Contributor
  • Post published:June 17, 2015
  • Post category:Ankylosing Spondylitis/Rare Disease

Over time, you may have noticed that you have neck pain, and that  you’re stiffer in the morning than you are by the afternoon. The most common symptom of ankylosing…

Continue Reading A.S.-Rare and Tricky to Diagnose
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Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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