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dystonia lifestyle

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The Different Things That Help My Dystonia The Most – In A Nutshell

The Different Things That Help My Dystonia The Most – In A Nutshell

  • Post author:Tom Seaman
  • Post published:May 26, 2025
  • Post category:Cervical Dystonia

I have had cervical dystonia since 2001. It was very severe for many years, but over time I have been able to gain significant control over my symptoms using a…

Continue Reading The Different Things That Help My Dystonia The Most – In A Nutshell
There is no cure: The worst words to hear and believe

There is no cure: The worst words to hear and believe

  • Post author:Tom Seaman
  • Post published:January 10, 2025
  • Post category:Dystonia

When I developed a neurological movement disorder called dystonia back in 2001, one of the first things I was told is that there is no cure. This terrified me. No…

Continue Reading There is no cure: The worst words to hear and believe
What Should You Know About Dystonia in Children?
Source: pixabay.com

What Should You Know About Dystonia in Children?

  • Post author:Sabina Kennedy
  • Post published:November 3, 2016
  • Post category:Dystonia/Rare Disease

The days of summer are at a close. The temperature has finally dropped, and there’s a chill in the air. A new season is upon us. Finally! School is back…

Continue Reading What Should You Know About Dystonia in Children?
How NOT to be Defined by Dystonia

How NOT to be Defined by Dystonia

  • Post author:Sabina Kennedy
  • Post published:October 20, 2016
  • Post category:Dystonia/Rare Disease

Have you ever wanted to push your own limits and break out of your comfort zone? If so, you’ll know that it is difficult because getting out of your routine…

Continue Reading How NOT to be Defined by Dystonia
More People Need to Be Like This Little 7-Year-Old
Source: www.pixabay.com

More People Need to Be Like This Little 7-Year-Old

  • Post author:James Ernest Cassady
  • Post published:October 11, 2016
  • Post category:Dystonia/Rare Disease

Celia Godfrey is awesome; there's just no debate about it. I wish I had her positive attitude. The seven-year-old lives with dystonia, a neurological condition that affects communication between the…

Continue Reading More People Need to Be Like This Little 7-Year-Old
Unwelcomed Advice After My Dystonia Diagnosis
Pixabay.com

Unwelcomed Advice After My Dystonia Diagnosis

  • Post author:Tom Seaman
  • Post published:May 5, 2016
  • Post category:Dystonia/Rare Disease

Living with a chronic health condition that dramatically alters one’s life can be very confusing, scary, and lonely. I lived in this mental misery for years when I developed dystonia,…

Continue Reading Unwelcomed Advice After My Dystonia Diagnosis
The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
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