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dystonia research

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Researchers Are On the Trail to Find the Cause of Dystonia
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Researchers Are On the Trail to Find the Cause of Dystonia

  • Post author:Al Pendleton
  • Post published:June 2, 2017
  • Post category:Dystonia/Rare Disease

Who would have thought that a classic novel came about because a student accidentally skipped a page in his test booklet for a final exam essay? The person charged with…

Continue Reading Researchers Are On the Trail to Find the Cause of Dystonia
The Little Gene Mutation with a Big Impact on Dystonia
[Source: pixabay.com]

The Little Gene Mutation with a Big Impact on Dystonia

  • Post author:Ronald Ledsen
  • Post published:January 12, 2017
  • Post category:Dystonia/Rare Disease/Timely

Science has a Little Engine That Could story that you may want to check out.  It makes for a pretty dense read, but once you wade through the data, the…

Continue Reading The Little Gene Mutation with a Big Impact on Dystonia
Adivina lo que este hombre está haciendo por Distonía con 45.000 dólares?

Adivina lo que este hombre está haciendo por Distonía con 45.000 dólares?

  • Post author:Patient Worthy Contributor
  • Post published:November 13, 2016
  • Post category:Dystonia/Rare Disease

Una enfermedad incurable que causa espasmos musculares dolorosos acaba de recibir $ 45,000 más cerca de una cura. La distonía es una condición incómoda que hace que los músculos se…

Continue Reading Adivina lo que este hombre está haciendo por Distonía con 45.000 dólares?
How to Convince Legislators to Support Dystonia
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How to Convince Legislators to Support Dystonia

  • Post author:Sabina Kennedy
  • Post published:October 14, 2016
  • Post category:Dystonia

Have you ever tried to convince legislators–especially your state’s Senator to support a cause–such as dystonia–that speaks to your heart? If so, you’ll know that it’s difficult because you need…

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The Story of Dystonia and a Family Event
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The Story of Dystonia and a Family Event

  • Post author:Kathy Devanny
  • Post published:May 20, 2016
  • Post category:Dystonia

A mother of three in Scotland had experienced dystonia symptoms since childhood, and these symptoms got progressively worse over the years. Like so many with a rare condition it took…

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Guess What This Guy is Doing for Dystonia with 45,000 Bucks?

Guess What This Guy is Doing for Dystonia with 45,000 Bucks?

  • Post author:Winnie Nash
  • Post published:November 2, 2015
  • Post category:Dystonia/Rare Disease

An incurable disease that causes painful muscle spasms just got $45,000 closer to a cure. Dystonia is an uncomfortable condition that causes muscles to contract involuntarily, forcing the body to…

Continue Reading Guess What This Guy is Doing for Dystonia with 45,000 Bucks?
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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