Danny’s Dose’s Family Education Event: Hot Springs, AR

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Danny's Dose Family Education Event: Hot Springs, AR October 1, 2022 EDUCATION:  Learn the "STEPS TO PROTECTION"  for proper EMERGENCY PREPAREDNESS,  "TREATMENT PLANS", working with your EMS/ER Staff, your existing…

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GACI Global’s Worldwide Walk

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GACI Global's Worldwide Walk September 25, 2022 The GACI/ARHR2 community, their family, friends, and supporters from around the world will be unified on one day, around one shared cause, when…

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Burning Nights’ Online CRPS Support Group

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Online CRPS Support Group August 17, 2022 Join Burning Nights CRPS Support for our next online (CRPS) peer support group on Wednesday 17 August 2022. Our online peer support groups…

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The Ehlers-Danlos Society’s 2022 International Scientific Symposium on the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Community Day

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2022 International Scientific Symposium on the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Community Day EDS & HSD Untangled: Ask The Experts---A Hybrid Conference September 18, 2022 The Ehlers-Danlos Society is…

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HCU Network America’s Classical HCU Virtual Meet-Up

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Classical HCU Virtual Meet-Up August 21, 2022 Meetups are an opportunity to connect patients and caregivers impacted by Classical Homocystinuria to one another virtually. About this event Struggling with the…

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Burning Nights’ Online CRPS Support Group

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Online CRPS Support Group August 17, 2022 Join Burning Nights CRPS Support for our next online (CRPS) peer support group on Wednesday 17 August 2022. Our online peer support groups…

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Don’t Miss Cure Mito Foundation’s Empower and Inspire Virtual Conference
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Don’t Miss Cure Mito Foundation’s Empower and Inspire Virtual Conference

The Cure Mito Foundation, a Patient Worthy partner organization, and integrative Cardiovascular Metabolism and Pathophysiology Laboratory (iCaMP) at Boston University, are hosting a virtual conference titled "Empower and Inspire: Understanding…

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CureDuchenne’s Live Workshop in Little Rock, AR

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CureDuchenne Live Workshop August 6, 2022 Little Rock, AR A FULL DAY EVENT FOCUSED ON IMPROVING THE QUALITY OF LIFE FOR INDIVIDUALS WITH DUCHENNE. CureDuchenne Cares is an interactive education…

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