World Orphan Drug Congress USA 2023: Inozyme HCP and Patient Engagement Executive Discuss Importance of Technology and Partnerships in Rare Disease Diagnosis and Treatment
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World Orphan Drug Congress USA 2023: Inozyme HCP and Patient Engagement Executive Discuss Importance of Technology and Partnerships in Rare Disease Diagnosis and Treatment

The World Orphan Drug Congress USA 2023 was held from May 23-25, 2023, at the Gaylord National Resort & Convention Center in National Harbor, MD. This conference is focused solely…

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Terrapinn’s World Orphan Drug Congress USA 2023

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World Orphan Drug Congress USA 2023 May 23-25, 2023 The World Orphan Drug Congress brings together leading pharmaceutical and biotech companies, government and regulatory authorities, patient advocacy groups, payers, investors…

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SynGAP Research Fund’s Involvement of the Brain Endothelium in Neurodevelopmental Disorders Webinar

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SynGAP Research Fund's Involvement of the Brain Endothelium in Neurodevelopmental Disorders Webinar May 18, 2023 Speaker: Dr. Baptiste Lacoste, Associate Professor, Faculty of Medicine, University of Ottawa To register, click…

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SynGAP Research Fund’s A Data-Driven Approach to Reconstructing Disease Trajectories in SYNGAP1-Related Disorders

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SynGAP Research Fund's A Data-Driven Approach to Reconstructing Disease Trajectories in SYNGAP1-Related Disorders April 27, 2023 Speaker: Jillian McKee, MD, PhD, Children's Hospital of Philadelphia To register, click here.

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Glu1 Deficiency Foundation’s Research Roundtable

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Research Roundtable: Understanding Speech and Language Challenges in Glut1 Deficiency April 25, 2023 Featuring Professor Dr. Jörg Klepper and Kristina Simonyan, MD, PhD, Dr. Med To register, click here.

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SynGAP Research Fund’s Brain Banking and the Hispano-American Brain Bank for Neurodevelopmental Disorders

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SynGAP Research Fund's Brain Banking and the Hispano-American Brain Bank for Neurodevelopmental Disorders March 23, 2023 Speaker: Veronica Martinez-Cerdeno, PhD, Professor, Dept of Pathology & Laboratory Medicine, UC Davis To…

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CureGRIN’s 2023 GRI Conference

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CureGRIN's GRI Conference 2023 March 23-26, 2023 Join us in Boston for this year's conference. GRI Conference 2023 is a special annual opportunity for clinicians, industry reps, GRI families, and…

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