The GM1 Family Meeting September 20th, 2019 San Diego, CA This GM1 Family Meeting is intended for all GM1 patients and their families. Don't miss this opportunity to learn about…
The Eighth China Rare Disease Summit The China Rare Disease Summit is the largest rare disease focused event held in China. A variety of rare disease stakeholders from across the…
Speakers: Darlene Madore, MSN, APRN, CPNP-PC, BSN, RN Eric Nixon To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click…
Speakers: Michele Kissous-Hunt, PA, Fifth Avenue GI Michelle, living with moderate CD Learn More About a Treatment Option for Adults with Moderate to Severe Ulcerative Colitis and Crohn’s Disease Register…
Speakers: Stephanie Stencil Laura Rohe, RN, BSN To register for this webinar, click here. To read more about Webinar Wednesdays, click here. Acknowledgment: This event post is sponsored by CSL…
Speakers: Marianne Anzabi, RN, CPN Traci Davies To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This…
Speakers: Lisa Mandolfo, MSN Robert Romine To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event…
The Global Genes RARE Patient Advocacy Summit This conference will be a convergence of a variety of rare disease stakeholders, such as rare disease patients, world renowned experts, and caregivers.…
Speakers: Lisa Mandolfo, MSN, RN Patricia Skinner To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment:…
The 2019 Boston Patient Education Conference Are you a sarcoidosis patient? Well don’t miss this important patient event. At this conference, sarcoidosis patients and their families will have the opportunity…
Speakers: William Blouin, MSN, ARNP, CPNP Appolos Laurore To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here.…
Speakers: Carla Duff, ARNP, CPNP-PC, MSN, CCRP, IgCN Stacy Ahearn To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click…
Speakers: Laura Rohe, RN, BSN, IgCN, AE-C Elizabeth Thirtyacre To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click…
September is Tyrosinemia Awareness Month! The good people of the Network Of Tyrosinemia Advocates (N.O.T.A.) have organized a family weekend later this month aimed to bring the Tyrosinemia community together. Let's…
The Dupuytren Disease Seminar September 8th, 2019 Featuring Dr. Charles Eaton, Founder of the Dupuytren Research Group Dr. Eaton will be giving a presentation about to Dupuytren's contracture and other…
Speakers: Jerrica Farias, MS, ARNP Glen Watson To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment:…
The 2019 Indianapolis One-Day Regional Conference Are you a GBS or CIDP patient? Then don't miss this one day patient conference. At this event, GBS and CIDP patients and their…
The 11th Annual Scientific Workshop Science of Small Trials in the Age of Biological Plausability The 11th Annual Scientific Workshop will be a convergence of key regulatory officials, researchers, and…
Speakers: Estelle Helms Carla Duff, ARNP, CPNP-PC, MSN, CCRP, IgCN To register for this webinar, click here. To read more about Webinar Wednesdays, click here. Acknowledgment: This event post is sponsored by…
Speakers: Carl Schlacht Carla Duff, ANP To register for this webinar, click here. To read more about PI Webinar Wednesdays, click here. Acknowledgment: This event post is sponsored by CSL Behring…
Speakers: Laura Rohe, RN, BSN, IgCN, AE-C Appolos Laurore To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click…
The 2019 Cincinnati Patient Education Conference Are you a sarcoidosis patient? Well don’t miss this important patient event. At this conference, sarcoidosis patients and their families will have the opportunity…
Speakers: Carla Duff, ANP Dani Ball To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment:…
GRYT Health, a mobile-based social community that was organized by caregivers and cancer survivors, is organizing its 2019 Global Virtual Cancer Conference. This event will be completely hosted on GRYT's…
The KIF1A Family & Scientific Conference KIF1A.ORG is putting together its very first KIF1A focused family and science conference. This conference will be an unprecedented opportunity for KIF1A associated neurological…
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