The 2019 Oley Foundation and University of Illinois at Chicago Annual Conference The Essentials of Home Parenteral and Enteral Nutrition: What Consumers and Clinicians Need to Know Are you a…
The 28th Annual Alpha-1 National Conference Orlando, Florida Are you an alpha-1 antitrypsin deficiency patient? Well don’t miss this important patient event. At this conference, alpha-1 antitrypsin deficiency patients and…
The 15th Annual Conference 2019 Rochester, Minnesota Are you a primary sclerosing cholangitis patient? Well don’t miss this important patient event. At this conference, primary sclerosing cholangitis patients and their…
The 13th Annual National Family Conference featuring the Walk Strong to Cure JM Chicago, Illinois Are you a juvenile dermatomyositis patient? Well don’t miss this important patient event. At this…
The International Symposium 2019 "Connecting The Pieces" Cincinnati, Ohio This will be the 8th International Symposium hosted by the Alagille Syndrome Alliance. This meeting is the largest gathering in the…
The 2019 IDF National Conference National Harbor, Maryland Are you a patient with primary immunodeficiency or common variable immune deficiency? Well don’t miss this important patient event. At this conference,…
The 3rd International APS Type 1 Symposium National Harbor, Maryland in partnership with the Immune Deficiency Foundation's IDF National Conference. Are you a autoimmune polyendocrine syndrome (APS) type 1 patient?…
The 2019 International Tuberous Sclerosis Complex Research Conference "Changing the Course of TSC" Toronto, Ontario Are you a tuberous sclerosis patient or medical expert? Well don’t miss this important research…
Speakers: Estelle Helms Carla Mendoza LVN, RN, BSN To register for this webinar, click here. To read more about Webinar Wednesdays, click here. Acknowledgment: This event post is sponsored by CSL Behring…
Speakers: William Blouin MSN, ARNP, CPNP Appolos Laurore To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click…
Speakers: William Blouin MSN, ARNP, CPNP Christal Dolan To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment:…
Speakers: William Blouin MSN, ARNP, CPNP Danielle Ball To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click…
Speakers: Lisa M. Mandolfo, RN Elizabeth Thirtyacre To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This…
Speakers: Laura Rohe RN, BSN, AE-C Robert (Rob) Romine To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click…
Speakers: Carla Duff, ANP Appolos Laurore To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event…
The 2019 CLOVES Family Conference Boston, Massachusetts Are you a CLOVES syndrome patient? Well don’t miss this important patient event. At this conference, CLOVES syndrome patients and their families will…
The Foundation for Sickle Cell Disease Research's 13th Annual Research & Educational Symposium Fort Lauderdale, FL Are you a sickle cell disease patient? Well don’t miss this important patient event.…
2019 IWMF Educational Forum Patients and caregivers will have the chance to learn from Waldenstrom's macroglobulinemia experts about the latest in research, treatment, and best practices for this disease. For…
Speakers: Robin Yawn, RN Christal Dolan To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event…
The 2019 International Choroideremia Symposium Philadelphia, Pennsylvania Join an international group of choroideremia experts for an annual event that will feature presentations of the latest research related to choroideremia and…
The 2019 Pheo Para Conference Upstate New York Biotech Accelerator, Syracuse, NY Are you a pheochromocytoma or paraganglioma patient? Well don’t miss this important patient event. At this conference, pheochromocytoma…
Speakers: Danielle Ball Laura Rohe RN, BSN, AE-C To register for this webinar, click here. To read more about Webinar Wednesdays, click here. Acknowledgment: This event post is sponsored by CSL Behring…
Speakers: Lisa M. Mandolfo, RN Elizabeth Thirtyacre To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This…
Speakers: Elizabeth Thirtyacre Robin Yawn RN, BSN To register for this webinar, click here. To read more about Webinar Wednesdays, click here. Acknowledgment: This event post is sponsored by CSL Behring and…
Q&A with NORD Director of Membership, Debbie Drell, on the Living Rare, Living Stronger Patient and Family Forum, June 21-23 in Houston, Texas Which health care professionals would most benefit…
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