Speakers: Lisa Mandolfo, MSN Robert Romine To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event…
The Global Genes RARE Patient Advocacy Summit This conference will be a convergence of a variety of rare disease stakeholders, such as rare disease patients, world renowned experts, and caregivers.…
Speakers: Lisa Mandolfo, MSN, RN Patricia Skinner To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment:…
The 2019 Boston Patient Education Conference Are you a sarcoidosis patient? Well don’t miss this important patient event. At this conference, sarcoidosis patients and their families will have the opportunity…
Speakers: William Blouin, MSN, ARNP, CPNP Appolos Laurore To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here.…
Speakers: Carla Duff, ARNP, CPNP-PC, MSN, CCRP, IgCN Stacy Ahearn To register for this live event, click here. For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click…
Speakers: Laura Rohe, RN, BSN, IgCN, AE-C Elizabeth Thirtyacre To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click…
September is Tyrosinemia Awareness Month! The good people of the Network Of Tyrosinemia Advocates (N.O.T.A.) have organized a family weekend later this month aimed to bring the Tyrosinemia community together. Let's…
The Dupuytren Disease Seminar September 8th, 2019 Featuring Dr. Charles Eaton, Founder of the Dupuytren Research Group Dr. Eaton will be giving a presentation about to Dupuytren's contracture and other…
Speakers: Jerrica Farias, MS, ARNP Glen Watson To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment:…
The 2019 Indianapolis One-Day Regional Conference Are you a GBS or CIDP patient? Then don't miss this one day patient conference. At this event, GBS and CIDP patients and their…
The 11th Annual Scientific Workshop Science of Small Trials in the Age of Biological Plausability The 11th Annual Scientific Workshop will be a convergence of key regulatory officials, researchers, and…
Speakers: Estelle Helms Carla Duff, ARNP, CPNP-PC, MSN, CCRP, IgCN To register for this webinar, click here. To read more about Webinar Wednesdays, click here. Acknowledgment: This event post is sponsored by…
Speakers: Carl Schlacht Carla Duff, ANP To register for this webinar, click here. To read more about PI Webinar Wednesdays, click here. Acknowledgment: This event post is sponsored by CSL Behring…
Speakers: Laura Rohe, RN, BSN, IgCN, AE-C Appolos Laurore To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click…
The 2019 Cincinnati Patient Education Conference Are you a sarcoidosis patient? Well don’t miss this important patient event. At this conference, sarcoidosis patients and their families will have the opportunity…
Speakers: Carla Duff, ANP Dani Ball To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment:…
GRYT Health, a mobile-based social community that was organized by caregivers and cancer survivors, is organizing its 2019 Global Virtual Cancer Conference. This event will be completely hosted on GRYT's…
The KIF1A Family & Scientific Conference KIF1A.ORG is putting together its very first KIF1A focused family and science conference. This conference will be an unprecedented opportunity for KIF1A associated neurological…
RAREsummit19 is a 1 day summit focusing on patient-centricity in rare disease progress. What if we were able to share information with the power to revolutionise the current rare…
I had the pleasure of attending the Glut1 Deficiency Foundation’s 2019 Conference. While this article can't possibly do the event justice and encompass all it had to offer, we will…
The Denver Patient Education Conference 2019 Are you a sarcoidosis patient? Well don’t miss this important patient event. At this conference, sarcoidosis patients and their families will have the opportunity…
The 6th International Conference of Glycoproteinoses "Translating Scientific Discovery Into Therapies" This international event will include researchers, patients, and caregivers that are involved in the international glycoprotein disease communities. This…
The 30th Annual PMD Family Support Conference 2019 Indianapolis, Indiana This event is a valuable opportunity for Pelizaeus-Merzbacher disease patients and their families to come together for a valuable time…
The 2019 NORD Living Stronger Forum was held in Houston, TX, at the end of June. The event brought families and physicians from all over for educational presentations, community, and…
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