Calling all members of the GNE Myopathy community! The Neuromuscular Disease Foundation (NDF) is hosting its 5th Annual Symposium on GNE Myopathy this August 30-31st at the University of California, Los Angeles. For…
The 9th International Congress of the Growth Hormone Research & IGF Societies with take place September 14-17th in Seattle, Washington. The meeting with host researchers and practitioners for an educational…
Metabolic Regulation of Immunity, Cardiometabolic Diseases, and Cancer: New Therapeutic Approaches A conference that is geared towards the medical and scientific community, this event will allow medical professionals, researchers, and…
Angelman and Dup15q Syndromes: Shared Pathways to Discovery This event will consist of two days of scientific research presentations pertaining to Angelman syndrome and dup15q syndrome. The symposium will also…
Patient Worthy’s partner the MDS Foundation will be hosting a patient forum on August 11th, 2018 from 9:30am-2:00pm "Whether you are a newly diagnosed patient, a long-term survivor, or a…
The 15th International Symposium on MPS and Related Diseases An event geared towards both medical experts and families affected by MPS diseases such as Chudley Rozdilsky syndrome and Hurler syndrome,…
NNPDF's 26th Annual Family Conference This event is geared towards the families affected by Niemann-Pick disease. The conference will be a unique and exciting opportunity for attendees to learn the…
A patient and family conference for patients and families affected by juvenile arthritis. Nurses, caregivers, or other health professionals are also encouraged to attend. Learn more information about facing juvenile…
The 2018 MPS Symposium August 2-4, 2018 People who attend the symposium can expect to learn about that latest in MPS research as well as workshops about best practices and…
The 2018 BOS Family Meet-Up This conference will be an event of support and celebration for BOS patients and their families. Attendees will be able to network, share stories, and…
The 2018 Scleroderma Foundation National Patient Education Conference The event will be an opportunity for scleroderma patients and their families to come together for a time of solidarity, community building,…
The 2018 Scleroderma Foundation National Patient Education Conference The event will be an opportunity for systemic scleroderma patients and their families to come together for a time of solidarity, community…
The 5P Minus Society Conference of Champions The conference will an opportunity for families affected by cri du chat syndrome (5P minus) to engage and learn from one another. This…
2018 World TSC Conference This event will be an opportunity for tuberous sclerosis patients and their families to network with one another. Participants will also be able to learn about…
ASAP Chiari & Syringomyelia Conference This event will be an opportunity for chiari and syringomyelia patients and their families to network with one another. Participants will also be able to…
This event will be an opportunity for epidermyolsis bullosa patients and their families to network with one another. Participants will also be able to learn about the latest in epidermyolsis…
BWS Family Conference 2018 This event will be a chance for families affected by BWS to come together, build community, share stories, and network with one another. In addition, the…
The 13th Moebius Syndrome Foundation Conference This event will be an opportunity for patients and families to learn the latest info from Moebius syndrome experts. Families will learn about a…
The 10th International SMS Conference "Honoring the Past, Treasuring the Past, Shaping the Future" The event will be an opportunity for SMS patients and their families to share their experiences…
Put Europe on your calendar for 2018! Usher patients, researchers and family members welcome to the two-day Symposium in July. For more information, contact [email protected]
2018 Biennial DSF Family and Professional Conference Don't miss this three day conference that will allow caregivers, medical, professionals, and families to converge, network, and learn. Dravet syndrome experts will…
The 2018 Noonan Syndrome Foundation Conference The event will be an opportunity for Noonan syndrome patients and their families to share their experiences with one another and build community. This…
The 2018 BDSRA Family Conference "Walk the Line For a Cure" This event is an invitation for the Batten disease patient community, including advocates, families, and patients themselves, to converge…
The 32nd Annual Medical & Family Conference This conference will be a chance for the trisomy 18 patient community to come together, to share stories, spread support, and build community.…
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