"The Future is NOW—Priorities, Partnerships, and Patient Voice" The conference will be an event for health professionals and CCHS patient community to come together in collaboration, communication, and support. Attendees…
PatientWorthy will be offering a pair of tickets to the Alagille Syndrome Alliance's (ALGSA) First Annual Gala. The tickets will be available for patients or caregivers in the San Diego…
Advances in Rare Musculoskeletal Disorders Symposium This event will feature keynote addresses from internationally renowned musculoskeletal disorder experts, who will address subjects such as Marfan syndrome. The event will include…
Sickle Cell Disease Research and Educational Symposium "From Biology to Therapy: Improvement of Therapeutic options for clinical care in sickle cell disease" This conference will present the latest research and…
The 2018 Annual SMA Conference This conference will bring together researchers, medical experts, scientists, and patient families to build community, learn, collaborate, and network. The conference consists of two parallel…
2018 International HPP Meeting This is an invitation only event open to physicians, scientists, and researchers. The Soft Bones Scientific Advisory Board will be responsible for sending invitations and determining…
The Danny’s Dose Alliance is very pleased to announce our latest project, “Saving Lil Lives” in honor of the 1 Year Anniversary of passing EMS Emergency Treatment Protocol Legislation in Missouri on May 12,…
Huntington's Disease Society of America is hosting the 33rd Annual HDSA Convention in Los Angeles, California. The three day event will highlight educational workshops and forums, as well as a…
Multiple Sclerosis Summit MS Community Conference and Exposition This educational event will allow MS patients to learn the latest in MS research and hear from disease experts about the best…
#HFconf #BeyondSleepy Attend the 2018 conference in order to learn the latest on a variety of subjects that are relevant to patients with hypersomnia and their families. Make the most…
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The conference will be a chance for researchers, health professionals, and scientists from across the globe to present research relevant to glomerular diseases like focal segmental glomerulosclerosis, podocyte biology, and…
13th Biennial Congress of ISSFAL The congress will be an opportunity for reseachers, scientists, and professionals to present research findings and learn from one another about the latest updates and…
Primary biliary cholangitis (PBC) is a rare disease, but you don’t have to face it alone. Join us for an educational program and connect with others who understand what you’re going…
World Liver Conference 2018 This conference will be an opportunity for medical experts to learn information about a variety of liver diseases, such as hepatitis, liver fibrosis, and liver cancer.…
International Alliance Of Patients' Organizations hosts the 8th Global Patients Congress. 200 reps from different healthcare facets will provide expertise, connection, and knowledge related to patient healthcare. Registration is INVITE…
The Alagille Syndrome Alliance (ALGSA) is preparing to host its first annual gala, The Gala of Dreams, this year on Saturday, June 30th, 2018 at the San Diego Marriott Del…
International Clinical Trials Day #ClinicalTrialsDay #BecomeAWARE May 20th, 2018 International Clinical Trials Day is celebrated every year on May 20th. Communities use the day to remember the efforts of study volunteers…
The Mastocytosis Society presents a support group meeting open to the public in Chicago, IL. Be sure to RSVP to Jeannie Dunn: [email protected]
This is a free event for patients that are faced with lung diseases like sarcoidosis to converge and learn from renowned medical specialists about what it takes to promote lung…
A patient and family conference for people with aplastic anemia, myelodysplastic syndromes, paroxysmal nocturnal hemoglobinuria, and acute myeloid leukemia. Nurses, caregivers, or other health professionals are also encouraged to attend. Learn more…
5th Annual International Symposium on Pheochromocytoma "Working Together Today for a Better Tomorrow" This event will be an opportunity for patients and medical professionals to learn about the latest research…
International Waldenstrom’s Macroglobulinemia Foundation, IWMF, presents the annual Educational Forum where patients and caretakers alike can come and learn from disease specialists about Waldenstrom Macroglobulinemia. Registration fee: $199 - until…
2018 National Outreach for Von Willebrand Conference This event will be a chance for patients with Von Willebrand's disease to learn more about how to manage living with this disease…
Annual 2018 PBC Conference This conference will be an opportunity for PBC patients and their loves ones to come together for education, empowerment, and community building.
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