Web-Based Rare Chronic Illness Support Group A peer support group for those living with rare health challenges led by Kerry Heckman, MSW, LICSW 1st Tuesday of each month, 4-5pm PST…
Navigating Grief to Growth: Bereavement Support Group July 5th, 2022 A discussion and support group for those who have lost a loved one to CF, whether recently or in the…
The Aplastic Anemia, MDS, and PNH Virtual Support Group June 28, 2022 AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia.…
Understanding the Ins and Outs of Insurance and Specialty Pharmacy- Shared Decision Making in MS Treatment Options Webinar June 28, 2022 Join Dr. Gary Owens as he helps us understand…
HCU Network America, Organic Acidemia Association, and Propionic Acidemia Foundation's "LAND OF THE FREE, HOME OF THE BRAVE" 2021 Conference June 2022 The Land of the Free, Home of the…
Webinar: Becoming a Partner in Your Care: MDS Support Group June 25, 2022 with Sara M. Tinsley, PhD, APRN, AOCN, Moffitt Cancer Center, Tampa, FL Attend this webinar dedicated to…
The Aplastic Anemia, MDS, and PNH Virtual Support Group June 25, 2022 AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia,…
Webinar: The MDS Widow: Sharing and Moving Forward June 23, 2022 Rochelle Ostroff-Weinberg, widow of Robert Weinberg, invites you to join her and other MDS widows on International Widows’ Day. To…
Understanding the Ins and Outs of Insurance and Specialty Pharmacy- Shared Decision Making in MS Treatment Options Webinar July 21, 2022 Join Dr. Gary Owens as he helps us understand…
Compass to MS Care: Reaching Rural America & Beyond Educational Lunch Program June 18, 2022 Featuring Guest Speakers Megan Weigel, DNP, ARNP-C, MSCN, and Suzanne O'Connell, patient advocate Attend this…
2022 FSHD Connect June 18-19, 2022 Orlando, FL An educated, empowered, and connected community can achieve extraordinary things! Every two years, the FSHD Connect conference brings together hundreds of patients,…
The Aplastic Anemia and MDS International Foundation's Transplant for MDS Virtual Support Group June 15, 2022 AAMDSIF is pleased to announce that we will host a support group for patients…
The Aplastic Anemia and MDS International Foundation's Pediatric Parents Virtual Support Group June 14, 2022 This virtual support group is designed to support pediatric parents whose children have been diagnosed…
Monthly Virtual Pilates Class Webcast June 13, 2022, 7-8PM ET Featuring instructor Bri Rhea, Pilates and Mindful Movement Instructor Click here to sign up.
Parenting Chronic Illness Webinar A web-based peer support group for parents of children living with health challenges led by Natalie Hopkins, MSW 2nd Monday of each month from 4-5pm This…
The Aplastic Anemia and MDS International Foundation's MDS Virtual Support Group June 11, 2022 AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with…
WA State Rare Chronic Illness Support Group A supportive group for WA state residents living with rare health challenges facilitated by Carrie Pope, MSW, LICSW 2nd Friday of each month,…
Web-Based Rare Chronic Illness Support Group A peer support group for those living with rare health challenges led by Kerry Heckman, MSW, LICSW 1st Tuesday of each month, 4-5pm PST…
On May 25, 2022, the Rare Disease Legislative Advocates (RDLA) held a briefing for the Rare Disease Congressional Caucus. This virtual event provided an update on various legislative initiatives relevant…
The Aplastic Anemia, MDS, and PNH Virtual Support Group May 28, 2022 AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia,…
Webinar: Precision Medicine in MDS and AML May 21, 2022 with Rory Shallis, MD, Yale School of Medicine, New Haven, CT Attend this webinar to learn about the role of…
Classical HCU Parent-Caregiver Online Meetup May 21, 2022 at 10 AM Online meet-ups are an opportunity to connect parents & caregivers impacted by classical homocystinuria to with each other. Whether…
Online Webinar: Osteoporosis With Dr. Elena Valassi May 19, 2022 Elena Valassi, MD, PhD is associate professor of endocrinology at the International University of Catalonia (UIC) and endocrinology consultant at…
WA State Rare Chronic Illness Support Group A supportive group for WA state residents living with rare health challenges facilitated by Carrie Pope, MSW, LICSW 2nd Friday of each month,…
Tube Feeding/TPN Virtual Support Group with Mary Wootten, Program Associate We invite you to attend the Oley Tube Feeding/TPN Virtual Support Group for Patients & Caregivers on Thursday, May 12, 2022,…
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