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Grief

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Grief in Early Diagnosis – John’s Parkinson’s Disease Story

Grief in Early Diagnosis – John’s Parkinson’s Disease Story

  • Post author:Patient Worthy Contributor
  • Post published:April 3, 2025
  • Post category:Parkinson's Disease

Patient Worthy is proud to support Parkinson's Disease Awareness Month, and we are honored to share John's story. It was something my therapist told me that started this whole thing.…

Continue Reading Grief in Early Diagnosis – John’s Parkinson’s Disease Story
How One Woman Uses Her Own Grief to Help Others

How One Woman Uses Her Own Grief to Help Others

  • Post author:Kendall Mason
  • Post published:December 31, 2020
  • Post category:Cerebral Palsy

Grief is something that is difficult to go through alone, and this year has brought too much of it. Maya McNeary is no stranger to grief, as she recently lost…

Continue Reading How One Woman Uses Her Own Grief to Help Others
After the One You Have Been Caring for Dies, Life Changes Dramatically 

After the One You Have Been Caring for Dies, Life Changes Dramatically 

  • Post author:Denise Crompton
  • Post published:September 23, 2020
  • Post category:Rare Disease

The care of a loved one with a debilitating condition often falls to their mother, but fathers, siblings or spouses also may take on that role. Even if there is…

Continue Reading After the One You Have Been Caring for Dies, Life Changes Dramatically 
Living With Grief as a Cancer Survivor

Living With Grief as a Cancer Survivor

  • Post author:Kendall Mason
  • Post published:September 3, 2020
  • Post category:Cancer/Rare Disease

Dealing with grief is different for everybody. Unfortunately, living with a rare disease can bring sadness and grief into one's life. That is why the Livestrong Foundation has offered a…

Continue Reading Living With Grief as a Cancer Survivor
What Would I Do? A Lennox-Gastaut Story

What Would I Do? A Lennox-Gastaut Story

  • Post author:Patient Worthy Contributor
  • Post published:November 29, 2017
  • Post category:Lennox-Gastaut syndrome/Timely

My son Nick has a rare, debilitating, life threatening disease called Lennox-Gastaut Syndrome (LGS). To learn more about LGS, click here. For over 38 years I have been consciously aware…

Continue Reading What Would I Do? A Lennox-Gastaut Story
Where to Turn for Support with the Loss of a Child
Pixabay

Where to Turn for Support with the Loss of a Child

  • Post author:Erica Zahn
  • Post published:November 29, 2016
  • Post category:Alveolar capillary dysplasia/Rare Disease

Alveolar capillary dysplasia, or ACD, is an extremely rare disease. In fact, there are less than 200 cases discussed in medical literature. It's caused by a genetic mutation in the…

Continue Reading Where to Turn for Support with the Loss of a Child
Live Facebook Event Tonight! Discussions about Grief

Live Facebook Event Tonight! Discussions about Grief

  • Post author:Rebekah
  • Post published:November 3, 2016
  • Post category:Rare Disease

Author of Permission to Mourn, Tom Zuba, has developed  a new way to “do grief”.  His own personal losses of daughter, son, and wife have led him on the path…

Continue Reading Live Facebook Event Tonight! Discussions about Grief
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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