What Happens When a Patient Is Living with Multiple Rare Diseases?
I have battled several autoimmune and neurological conditions that are triggered by food and other factors for over 50 years. It took most of my life to reach not one,…
I have battled several autoimmune and neurological conditions that are triggered by food and other factors for over 50 years. It took most of my life to reach not one,…
When biopharmaceutical company Invex Therapeutics (“Invex”) first decided to launch a clinical trial to evaluate Presendin (sustained-release exenatide) for idiopathic intracranial hypertension (IIH), the company felt excited. Presendin is a…
Some conditions or diseases are more prevalent in certain groups. In the case of idiopathic intracranial hypertension (IIH), new research suggests that it is much more common in Black or…
Typically, idiopathic intracranial hypertension (IIH) is associated with obesity, or a body mass index (BMI) over 30.0. As obesity rates have continued to increase globally, so have the incidences of…
Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…
As shared in a press release by the American Academy of Neurology; the medical community had taken note of the rare brain pressure disorder idiopathic intracranial hypertension (IIH) when they…
Written by Jennifer Peterson As a young adult, this journey was not something I ever imagined taking, and it certainly was not for the faint of heart. Being diagnosed with…
A few years ago, Kyan Harris started experiencing some unwelcome health issues. At just nine years old, the boy wanted to play rugby with his friends. But instead, he was…
According to a story from Neurology Advisor, the results of a recent study suggest that the presence of psychiatric issues in patients with idiopathic intracranial hypertension is connected to a…
According to a story from Mirror Online, 29 year old Jessica Walton of Cambridgeshire, England, was first diagnosed with the rare disease intracranial hypertension four years ago. Since then, her…
Nursing student Jess Boxley could be blind if she didn't see a doctor for her extreme headaches and neck pain, reported The Huffington Post UK. Jess, at a young 22-years-old,…
While April Archote faces the physical pain and financial hardships of living with a rare brain disease, she continues to be positive and count her blessings, CCHeadliner reported. In 2013, April was…