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Mama e Hija: Cambiando el Mundo
Hero mom helps daughter tackle Bechet's disease.

Mama e Hija: Cambiando el Mundo

  • Post author:Jean Martell
  • Post published:February 22, 2017
  • Post category:Behçet's/Español/Rare Disease

No hace mucho tiempo, empecé a seguir una prensa sobre una adorable joven llamada, Maddie, de Lawndale, Carolina del Norte, que vive con la enfermedad de Behçet, y estoy encantada…

Continue Reading Mama e Hija: Cambiando el Mundo
Esta es la mejor historia de exito entre mama e hija

Esta es la mejor historia de exito entre mama e hija

  • Post author:Patient Worthy Contributor
  • Post published:November 8, 2016
  • Post category:Complex Regional Pain Syndrome/Rare Disease

Usted no va a venir a través de demasiadas personas en sus vidas como Elaine Gómez y su hija, Michelle DeMont. Y es probable que no se encontrará con el…

Continue Reading Esta es la mejor historia de exito entre mama e hija
Heroic Mom and Daughter Are Inspiring The World
Hero mom helps daughter tackle Bechet's disease.

Heroic Mom and Daughter Are Inspiring The World

  • Post author:Alisha Stone
  • Post published:November 19, 2015
  • Post category:Behçet's/Rare Disease

Not long ago, I started following some press about an adorable tween named, Maddie, from Lawndale, NC, who is living with Behçet’s disease, and I’m just smitten! At the ripe…

Continue Reading Heroic Mom and Daughter Are Inspiring The World

This is the Ultimate Mother-Daughter Success Story

  • Post author:EmpatheticBadass
  • Post published:November 3, 2015
  • Post category:Complex Regional Pain Syndrome/Rare Disease

You won’t come across too many people in your lifetimes like Elaine Gomez and her daughter, Michelle DeMont. And you probably won’t come across anyone who has died, or nearly…

Continue Reading This is the Ultimate Mother-Daughter Success Story
This Girl’s Remarkable Story Is Sure To Inspire You

This Girl’s Remarkable Story Is Sure To Inspire You

  • Post author:Patient Worthy Contributor
  • Post published:September 4, 2015
  • Post category:GLUT1 DS/Rare Disease

This Michelle Tanner look-alike (she even knows the signature "you got it, dude!") is one of the brave faces of GLUT1 DS. RareConnect.org describes Gracie as a bubbly, strong willed three…

Continue Reading This Girl’s Remarkable Story Is Sure To Inspire You
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
Read Full Story Here
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