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Finding Meaning and Purpose in Our Pain and Suffering

Finding Meaning and Purpose in Our Pain and Suffering

  • Post author:Tom Seaman
  • Post published:October 30, 2023
  • Post category:Dystonia

Life is ever evolving so it is important to remember that the storms in our lives do not always last forever. When I developed dystonia in 2001, I lost everything I was…

Continue Reading Finding Meaning and Purpose in Our Pain and Suffering
When Living with a Rare Disease, Isolating Ourselves can Often Feel Less Lonely

When Living with a Rare Disease, Isolating Ourselves can Often Feel Less Lonely

  • Post author:Tom Seaman
  • Post published:November 3, 2022
  • Post category:Dystonia

This may sound like a strange title so let me explain. I live with a health condition called dystonia, which is a neurological movement disorder. It is the third most…

Continue Reading When Living with a Rare Disease, Isolating Ourselves can Often Feel Less Lonely
How Getting Lost in Physical and Mental Pain Helped Me Find Myself
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How Getting Lost in Physical and Mental Pain Helped Me Find Myself

  • Post author:Tom Seaman
  • Post published:October 28, 2022
  • Post category:Dystonia

In 2001, dystonia totally changed my life. I put together a video that shares my 20+ year pictorial journey with dystonia, chronic pain, and overcoming anxiety, depression, and morbid obesity…

Continue Reading How Getting Lost in Physical and Mental Pain Helped Me Find Myself
Overview of Coping Mechanisms That Can Help with Isolation-Induced Depression
source: pixabay.com

Overview of Coping Mechanisms That Can Help with Isolation-Induced Depression

  • Post author:Patient Worthy Contributor
  • Post published:September 4, 2020
  • Post category:COVID-19/Rare Disease

by Caitlin Seida from In The Cloud Copy Isolation as a result of COVID-19 precautions is necessary but can take its toll on your physical, mental, emotional, and spiritual well-being.…

Continue Reading Overview of Coping Mechanisms That Can Help with Isolation-Induced Depression
The Positives of Social Distancing: Focusing on What You CAN Do
source: pixabay.com

The Positives of Social Distancing: Focusing on What You CAN Do

  • Post author:Trudy Horsting
  • Post published:March 20, 2020
  • Post category:Rare Disease

Social distancing sucks in so many ways. I'll be the first to admit it. You can feel isolated, alone, stuck, scared. But, there are some upsides to this crazy situation.…

Continue Reading The Positives of Social Distancing: Focusing on What You CAN Do
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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