• About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW
Click Here To Share Your Story with Huntington's Disease
Click Here to Read Real Patient & Caregiver Stories
Click Here To Share Your Story With MASH

january

  1. Home>
  2. january
Bringing Awareness to Alternating Hemiplegia of Childhood 
source: pixabay.com

Bringing Awareness to Alternating Hemiplegia of Childhood 

  • Post author:James Moore
  • Post published:January 13, 2022
  • Post category:Alternating hemiplegia of childhood

January has been designated as a time to bring awareness to alternating hemiplegia of childhood! Alternating hemiplegia of childhood is extremely rare, with about 1 in 1,000,000 reported cases; therefore…

Continue Reading Bringing Awareness to Alternating Hemiplegia of Childhood 
New Year’s Resolution: Get Screened for Cervical Cancer During Cervical Health Awareness Month!

New Year’s Resolution: Get Screened for Cervical Cancer During Cervical Health Awareness Month!

  • Post author:Jean Martell
  • Post published:January 3, 2022
  • Post category:Rare Disease

January is Cervical Health Awareness Month! So, why not use the momentum and goal-making spirit of New Year's Resolutions to make sure you get screened for cervical cancer and schedule…

Continue Reading New Year’s Resolution: Get Screened for Cervical Cancer During Cervical Health Awareness Month!
What to Do and Where to Go: Observing Moebius Syndrome Awareness Day
source: pixabay.com

What to Do and Where to Go: Observing Moebius Syndrome Awareness Day

  • Post author:Jean Martell
  • Post published:January 15, 2020
  • Post category:Moebius Syndrome/Rare Disease

January 24th is Moebius Syndrome Awareness Day! Let's take a deeper dive into what Moebius Syndrome is and what we can do to push awareness on this day (and all…

Continue Reading What to Do and Where to Go: Observing Moebius Syndrome Awareness Day
Foresight for 2020: What to Know During Cervical Health Awareness Month
source: pixabay.com

Foresight for 2020: What to Know During Cervical Health Awareness Month

  • Post author:Jean Martell
  • Post published:January 10, 2020
  • Post category:Cervical Cancer/Rare Disease

January is Cervical Health Awareness Month! The New Year holiday is all about taking stock of one's self and making efforts to improve or set goals for a better you.…

Continue Reading Foresight for 2020: What to Know During Cervical Health Awareness Month
Bringing Awareness to Alternating Hemiplegia of Childhood 
source: pixabay.com

Bringing Awareness to Alternating Hemiplegia of Childhood 

  • Post author:Jean Martell
  • Post published:January 3, 2020
  • Post category:Alternating hemiplegia of childhood

January has been designated as a time to bring awareness to alternating hemiplegia of childhood! Alternating hemiplegia of childhood is extremely rare, with about 1 in 1,000,000 reported cases; therefore…

Continue Reading Bringing Awareness to Alternating Hemiplegia of Childhood 
New Year’s Resolution: Get Screened for Cervical Cancer During Cervical Health Awareness Month!

New Year’s Resolution: Get Screened for Cervical Cancer During Cervical Health Awareness Month!

  • Post author:Jean Martell
  • Post published:December 31, 2018
  • Post category:Rare Disease

January is Cervical Health Awareness Month! So, why not use the momentum and goal-making spirit of New Year's Resolutions to make sure you get screened for cervical cancer and schedule…

Continue Reading New Year’s Resolution: Get Screened for Cervical Cancer During Cervical Health Awareness Month!
The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info