Have Bile Acid Synthesis Disorder? Struggling to Pay for Treatment? Caring Voice Can Help
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Have Bile Acid Synthesis Disorder? Struggling to Pay for Treatment? Caring Voice Can Help

Are you grateful for bile? You should be. But chances are you never think about the importance of this chemical compound that's found in the liver--until it's not there, or…

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19 Tips from an LGS Family: Traveling When Your Child Has Special Needs – Part 1
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19 Tips from an LGS Family: Traveling When Your Child Has Special Needs – Part 1

Traveling is certainly possible and can be more relaxing with some pre-planning and organization.  Some of these ideas may not be applicable to you and your family.  I have compiled…

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Registration is Open for This International Lennox-Gastaut Syndrome Conference

Pack your bags LGS Warriors, your conference is headed to Orlando, FL this November! The LGS Foundation is holding it's fifth International Family and Professional Conference to promote collaboration between LGS…

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What Do You Know About Cannabidiol Drug Interactions?
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What Do You Know About Cannabidiol Drug Interactions?

Recent studies have shown promising results that cannabidiol (CBD) helps relieve different forms of epileptic seizures like those from Lennox-Gastaut syndrome and Dravet syndrome. Lennox–Gastaut syndrome (LGS) is particularly severe, childhood…

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Epilessia infantile
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Epilessia infantile

GW Pharmaceuticals sta scoprendo ... Epidiolex® (fabbricato e testato da GW Pharmaceuticals) è un candidato medico cannabinoide medico per il trattamento di sindromi di epilessia rara, resistente e precoce, come…

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Peut-on guérir l’épilepsie infantile?
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Peut-on guérir l’épilepsie infantile?

GW Pharmaceuticals découvre ... Epidiolex® (fabriqué et testé par GW Pharmaceuticals) est un candidat cannabinoïde médical leader pour le traitement de syndromes d'épilepsie rares, résistants et débutants tels que le…

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Could Weed Cure Childhood Epilepsy?
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Could Weed Cure Childhood Epilepsy?

GW Pharmaceuticals is finding out... Epidiolex® (manufactured and tested by GW Pharmaceuticals) is a leading medical cannabinoid candidate for the treatment of rare, resistant, and early-onset epilepsy syndromes such as…

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Brother of Nine-year-old with Epilepsy Holds ‘Purple Dress Down Day’ Fundraiser

Most people don't think about illnesses or diseases unless they're directly affected. After all, who wants to worry about things that will likely never be a problem? Rare diseases obviously do not get much attention…

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