medical equity – Patient Worthy

Rare Community Profiles: #RAREis: Advancing Clinical Trial and Patient Equity with the Foundation for Sarcoidosis Research’s Mary McGowan

Post author:Jessica Lynn
Post published:June 4, 2024
Post category:Sarcoidosis

Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more.…

source: pixabay.com

Rare Community Profiles: Understanding MAC Lung Disease, Bronchiectasis, and PAH: A Discussion with Dr. Martina Flammer

Post author:Jessica Lynn
Post published:September 13, 2023
Post category:Bronchiectasis Mycobacterium avium complex infection Mycobacterium avium infection pulmonary arterial hypertension

Rare Community Profiles Rare Community Profiles is a new Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their…

Photo courtesy of Pari Schroeder

A Rare Family: From EoE and POTS to EDS and Intussusception, the Schroeder Family Fights for Awareness (Pt. 2)

Post author:Jessica Lynn
Post published:March 3, 2023
Post category:Ehlers Danlos Syndrome Ehlers-Danlos Syndrome Eosinophilic Esophagitis

Make sure to check out Part 1 of the Schroeder family's story before reading further. CURED Currently, the Schroeder family is doing as well as they can to manage and to ensure…

Rare Community Profiles: #RAREis: Advancing Clinical Trial and Patient Equity with the Foundation for Sarcoidosis Research’s Mary McGowan

Rare Community Profiles: Understanding MAC Lung Disease, Bronchiectasis, and PAH: A Discussion with Dr. Martina Flammer

A Rare Family: From EoE and POTS to EDS and Intussusception, the Schroeder Family Fights for Awareness (Pt. 2)

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