Dupixent Label Expands to Include Children Ages 1-11 with Eosinophilic Esophagitis
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Dupixent Label Expands to Include Children Ages 1-11 with Eosinophilic Esophagitis

In late January 2024, the U.S. Food and Drug Administration approved a label expansion for Dupixent (dupilumab). Dupixent, a monoclonal antibody targeting IL-4 and IL-13, is currently used to treat…

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Research Suggests That Maternal and Infant Antibiotic Exposure Heightens EoE Risk
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Research Suggests That Maternal and Infant Antibiotic Exposure Heightens EoE Risk

Over the last three decades, researchers and doctors have noticed a concerning trend: increasing cases of eosinophilic esophagitis (EoE), a chronic digestive system disorder, in infants and children. In particular,…

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After a 26-year Journey, I Created My Own Diet and Healed My Eosinophilic Esophagitis (EoE)

Editor's Note: We believe that patients are a key part of developing and leading the conversation in disease communities. Patient Worthy sometimes partners with reputable agencies that wish to speak…

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My Life with Rare Chronic Illnesses
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My Life with Rare Chronic Illnesses

Hello, my name is Megan. I have been diagnosed with postural orthostatic tachycardia syndrome (POTS), Ehlers-Danlos syndrome (EDS), mast cell activation syndrome (MCAS), small fiber neuropathy (SFN), eosinophilic esophagitis (EOE),…

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A Rare Family: From EoE and POTS to EDS and Intussusception, the Schroeder Family Fights for Awareness (Pt. 2)
Photo courtesy of Pari Schroeder

A Rare Family: From EoE and POTS to EDS and Intussusception, the Schroeder Family Fights for Awareness (Pt. 2)

Make sure to check out Part 1 of the Schroeder family's story before reading further.  CURED Currently, the Schroeder family is doing as well as they can to manage and to ensure…

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A Rare Family: From EoE and POTS to EDS and Intussusception, the Schroeder Family Fights for Awareness (Pt. 1)
Photo courtesy of Pari Schroeder

A Rare Family: From EoE and POTS to EDS and Intussusception, the Schroeder Family Fights for Awareness (Pt. 1)

When asked about the key way that the medical field can better serve patients, Pari Schroeder doesn’t waver: multidisciplinary care. She acknowledges that the medical system can often be very…

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“A Rare Gem”: Savannah’s Story Spreads Ogden Syndrome Awareness (Pt. 1)
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“A Rare Gem”: Savannah’s Story Spreads Ogden Syndrome Awareness (Pt. 1)

Right now, there are approximately 100 people in the world who have been diagnosed with Ogden syndrome, a rare neurodevelopmental disorder. Lacey Smith’s 11-year-old daughter Savannah is part of this…

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If you have EoE, try Making and Enjoying These Healthy Homemade Foods free from Preservatives and Other Harmful Ingredients

In a previous post, I shared what it took to heal my eosinophilic esophagitis. In this post, I share a few tasty and healthy foods, and a recipe for organic…

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Expanding Eosinophilic Esophagitis Research: An Interview with Dr. Evan Dellon (Pt. 2)
Dr. Evan Dellon

Expanding Eosinophilic Esophagitis Research: An Interview with Dr. Evan Dellon (Pt. 2)

Before you read on, make sure you've checked out Part 1 of our interview, where we discussed what eosinophilic esophagitis is, its symptoms and diagnostic criteria, and why Dr. Dellon chose to…

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Expanding Eosinophilic Esophagitis Research: An Interview with Dr. Evan Dellon (Pt. 1)
Dr. Evan Dellon

Expanding Eosinophilic Esophagitis Research: An Interview with Dr. Evan Dellon (Pt. 1)

The U.S. Food and Drug Administration (FDA) approved Dupixent for the treatment of moderate-to-severe atopic dermatitis in patients aged 6 months+; the drug is also approved as add-on maintenance therapy…

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Study: Eosinophilic Esophagitis Patients at Greater Risk for Psychiatric Illness

A recent study published in the American Journal of Gastroenterology has demonstrated that people diagnosed with eosinophilic esophagitis (EoE) are at a higher risk for anxiety, mood disorders, as well as ADHD. With this…

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Study Finds Symptoms Can’t be The Only Measure for Response to Eosinophilic Esophagitis Treatment
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Study Finds Symptoms Can’t be The Only Measure for Response to Eosinophilic Esophagitis Treatment

A new study has examined the long-term impacts of esophageal dilation in eosinophilic esophagitis (EoE). The aim was to uncover the link between dilation and symptom reports. Additionally, the research…

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Don’t Miss National Eosinophil Awareness Week!

It's time to raise awareness for and celebrate the patient population that lives with eosinophilic disorders. From May 15th until the 21st, the American Partnership for Eosinophilic Disorders (APFED) is…

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