Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
MASH Rec CARD (13)
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

movement disorders

  1. Home>
  2. movement disorders>
  3. Page 2
This Bike-Rider Will Make You Want to Raise Awareness Right Now
Pixabay

This Bike-Rider Will Make You Want to Raise Awareness Right Now

  • Post author:Erica Zahn
  • Post published:June 6, 2016
  • Post category:Dystonia/Rare Disease

When UK cyclist Andrew Beale decided he was going to throw his support behind The Dystonia Society, he didn't waste time getting sponsors. With nearly $400 pledged, he was disappointed to learn that…

Continue Reading This Bike-Rider Will Make You Want to Raise Awareness Right Now
Moving in the Right Direction, Hunting for a Movement Disorders Cure

Moving in the Right Direction, Hunting for a Movement Disorders Cure

  • Post author:Winnie Nash
  • Post published:March 15, 2016
  • Post category:Dystonia/Parkinson's Disease

The Dean of Student Affairs at the National Institutes of Health (NIH), Sandra LaBlance, has one thing to say about Rachel Hunt: “She will make a difference in the world.”…

Continue Reading Moving in the Right Direction, Hunting for a Movement Disorders Cure
Magic Strikes Twice: A New Breakthrough Connects Dystonia and Parkinson’s

Magic Strikes Twice: A New Breakthrough Connects Dystonia and Parkinson’s

  • Post author:Kiki Jones
  • Post published:November 6, 2015
  • Post category:Dystonia/Rare Disease

We recently posted an article discussing the positive connections between dystonia and depression (and Harry Potter, oddly enough). That was just one instance where researchers were finding interesting new treatment…

Continue Reading Magic Strikes Twice: A New Breakthrough Connects Dystonia and Parkinson’s
Guess What This Guy is Doing for Dystonia with 45,000 Bucks?

Guess What This Guy is Doing for Dystonia with 45,000 Bucks?

  • Post author:Winnie Nash
  • Post published:November 2, 2015
  • Post category:Dystonia/Rare Disease

An incurable disease that causes painful muscle spasms just got $45,000 closer to a cure. Dystonia is an uncomfortable condition that causes muscles to contract involuntarily, forcing the body to…

Continue Reading Guess What This Guy is Doing for Dystonia with 45,000 Bucks?
Balloons Do More Than Just Fly, They Raise Awareness

Balloons Do More Than Just Fly, They Raise Awareness

  • Post author:Kiki Jones
  • Post published:October 28, 2015
  • Post category:Dystonia/Rare Disease

The Proclaimers said they would walk 500 miles for the one they love. This balloon does one better. In a blaze of purple, 600 balloons were released in the UK…

Continue Reading Balloons Do More Than Just Fly, They Raise Awareness

Finding Solutions in the Most Unlikely Places, Here’s What You Do

  • Post author:Rebekah
  • Post published:October 7, 2015
  • Post category:Dystonia/Rare Disease

What do you do when you can't get the care you need? If it's an insurance issue holding you up, then you'll probably end up spending countless hours on the…

Continue Reading Finding Solutions in the Most Unlikely Places, Here’s What You Do
  • Go to the previous page
  • 1
  • 2
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
Read Full Story Here
CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info