Muculipidosis 3 – Patient Worthy

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For Caregivers, Self-Care is Not a Luxury – It’s Necessity!

Post author:Patient Worthy Contributor
Post published:June 23, 2017
Post category:Mucolipidosis Type III

At any time of the day, in any hospital, a nurse is giving instructions to a parent, spouse, child, sibling or friend of a patient, as to how to take…

Editor’s Choice: Staying Strong, Fighting for Treatment, and Feeling Vulnerable- Just Another Day in the Life of Rare Patients

Post author:Patient Worthy Contributor
Post published:June 16, 2017
Post category:Charcot-Marie-Tooth disease Cystic Fibrosis Mucolipidosis Type III Rare Disease Tardive Dyskinesia

Happy Father's Day Weekend Patient Worthians! This week we have an amazing essay written by CMT Warrior Sarah Magno regarding her personal experience overcoming rare disease obstacles. We also have some…

For Caregivers, Self-Care is Not a Luxury – It’s Necessity!

Editor’s Choice: Staying Strong, Fighting for Treatment, and Feeling Vulnerable- Just Another Day in the Life of Rare Patients

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