This week Neurocrine Biosciences announced the results of its KINECT®-4 Phase 3 study of INGREZZA® capsules. Results of the trial were published in the Journal of Clinical Psychopharmacology. A long-term…
When it comes to caregiving for a family member, loved one, or other individual living with any type of health issue, there is an enormous financial, emotional, and mental burden…
Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most…
Because of COVID-19, many meetings and events have been moved online - but that does not mean the learning has stopped. During the virtual Psych Congress Elevate conference, which…
According to an article published by MD Magazine, valbenazine, a VMAT2 inhibitor, has proven to be effective in treating patients with Tardive Dyskinesia (TD). Before valbenazine's FDA approval last year,…
Bilateral deep brain stimulation (DBS) has been known to help with symptoms of dystonia. But for a form of tardive dyskinesia known as tardive dystonia, DBS hasn't been studied as…
So I don’t think it will surprise anyone to learn that people living with mental illnesses like schizophrenia or bipolar disorder have to put up with a huge ration of…
Rakesh Jain is a professor at the University of Texas Medical School, who recently spoke at a press conference for Neurocrine Biosciences. His talk was covered in an article published…
Too often rare diseases such as tardive dyskinesia (TD) are treated with medications and therapies that were made for other illnesses. This occurs pre-diagnosis, by physicians who have never seen…
Happy Father's Day Weekend Patient Worthians! This week we have an amazing essay written by CMT Warrior Sarah Magno regarding her personal experience overcoming rare disease obstacles. We also have some…
For those of us who aren't familiar with Tardive dyskinesia, here's a little background: Tardive dyskinesia is actually something like a severe, often long-lasting side effect to drugs that treat…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
