Adapting and Overcoming: How Chris Uses her HOD Diagnosis to Connect the Community (Pt. 2)
Courtesy of HODA

Adapting and Overcoming: How Chris Uses her HOD Diagnosis to Connect the Community (Pt. 2)

Before you read on, make sure to check out Part 1 of our interview with Christina ("Chris") Coates. In Part 1, we discussed Chris' Cavernous Malformation, surgery, and diagnostic journey to hypertrophic…

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Adapting and Overcoming: How Chris Uses her HOD Diagnosis to Connect the Community (Pt. 1)
Photo courtesy of Chris Coates

Adapting and Overcoming: How Chris Uses her HOD Diagnosis to Connect the Community (Pt. 1)

Christina (“Chris”) Coates has lived a full, joyous, and fulfilling life. The Arizona native has built something beautiful: a family with two daughters, two cats, two dogs, and a loving…

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Learning to Live with Spontaneous Periodic Hypothermia: Lachlan’s Story (Pt. 1)
Photo courtesy of Mark, Donna, and Lachlan Lasikiewicz

Learning to Live with Spontaneous Periodic Hypothermia: Lachlan’s Story (Pt. 1)

When Lachlan Lasikiewicz turned gray one day, his lips a frightening blue, his grandma and aunt didn’t panic. They simply wrapped him up in a blanket and held him close,…

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ICYMI: Swimmer’s 100km Swim Raised Huntington’s Disease Awareness
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ICYMI: Swimmer’s 100km Swim Raised Huntington’s Disease Awareness

HTT gene mutations cause Huntington’s disease, a rare and inherited neurological condition. Those with a family history of Huntington’s disease may choose to undergo genetic testing to learn more, though…

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Defective Immune Cells Cause Rare Childhood Neurological Disorders
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Defective Immune Cells Cause Rare Childhood Neurological Disorders

A recent University of Sheffield news release explores findings which highlight a potential cause of leukodystrophies: immune cells. This group of rare childhood neurological disorders impacts the myelin sheath, the…

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Klotho Gene Variant Reduces Alzheimer’s Disease Risk in High-Risk Adults
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Klotho Gene Variant Reduces Alzheimer’s Disease Risk in High-Risk Adults

  According to MedPage Today, carriers of the gene variation APOE4 are much more at risk of developing Alzheimer's disease. However, researchers found that one copy of the Klotho gene mutation,…

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Nasal Vaccine Prevents Neuronal Loss in Mice Models of Alzheimer’s Disease
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Nasal Vaccine Prevents Neuronal Loss in Mice Models of Alzheimer’s Disease

According to an article in The Asahi Shimbun, Japanese scientists have developed a new vaccine to mitigate neuronal degeneration caused by Alzheimer's disease. The vaccine, delivered nasally, had promising results…

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Chemicals Linked to Development of Parkinson’s Disease, Says Dutch Neurologist
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Chemicals Linked to Development of Parkinson’s Disease, Says Dutch Neurologist

  According to Parkinson's News Today, Dutch neurologist Bastiaan Bloem, MD, believes that the development of Parkinson's disease can be attributed to chemical exposure. About Parkinson's Disease Parkinson's disease is…

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