Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
MASH Rec CARD (13)
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

olympics

  1. Home>
  2. olympics
Doctors Thought She Had Psychosis—But This Olympic Rugby Star was Battling Autoimmune Encephalitis
Source: Pixabay

Doctors Thought She Had Psychosis—But This Olympic Rugby Star was Battling Autoimmune Encephalitis

  • Post author:Jessica Lynn
  • Post published:March 22, 2023
  • Post category:Autoimmune encephalitis

At the 2020 Olympic Games (held in Tokyo in 2021), British rugby sevens player Abi Burton gave it her all. Coming from a rugby background, Burton wanted to ensure that…

Continue Reading Doctors Thought She Had Psychosis—But This Olympic Rugby Star was Battling Autoimmune Encephalitis
Olympic Swimmer Michael Klim Shares CIDP Diagnosis
Free-Photos / Pixabay

Olympic Swimmer Michael Klim Shares CIDP Diagnosis

  • Post author:Jessica Lynn
  • Post published:July 15, 2022
  • Post category:Chronic Inflammatory Demyelinating Polyneuropathy

Michael Klim was traveling three years ago when he felt like something within his body was wrong. The Polish-born swimmer, who has won two gold medals for Australia while participating…

Continue Reading Olympic Swimmer Michael Klim Shares CIDP Diagnosis
Paralympic Athlete with Usher Syndrome Has Been Forced to Withdraw from The Tokyo Games

Paralympic Athlete with Usher Syndrome Has Been Forced to Withdraw from The Tokyo Games

  • Post author:Trudy Horsting
  • Post published:July 28, 2021
  • Post category:usher syndrome

Becca Meyers, a 26-year-old swimmer who was born deaf, has just been told she can't bring her care assistant to the Tokyo Games. As a result, she has had to…

Continue Reading Paralympic Athlete with Usher Syndrome Has Been Forced to Withdraw from The Tokyo Games
Serving Up Sjogren’s: Her Private Battle in the Public Eye
Source: pixabay.com

Serving Up Sjogren’s: Her Private Battle in the Public Eye

  • Post author:Patient Worthy Contributor
  • Post published:October 31, 2016
  • Post category:Rare Disease/Sjogren's Syndrome

For decades, Venus Williams has been a powerhouse in the world of tennis. Since becoming pro in 1994, she has won 7 Grand Slam Singles titles and was formerly ranked No.…

Continue Reading Serving Up Sjogren’s: Her Private Battle in the Public Eye
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
Read Full Story Here
CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info