pleuroparenchymal fibroelastosis

kalhh / Pixabay

This Form of Rare Interstitial Lung Disease is Bad News for Scleroderma Patients

Post author:James Moore
Post published:August 20, 2019
Post category:Rare Disease Systemic Sclerosis

According to a story from Scleroderma News, a recent study has recommended that scleroderma patients with a rare, poorly understood form of interstitial lung disease (ILD) should receive regular monitoring…

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Keep Up to Date

Learn More