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Te preguntamos, $100 mil en efectivo o cura para la espondilitis anquilosante?

Te preguntamos, $100 mil en efectivo o cura para la espondilitis anquilosante?

  • Post author:Patient Worthy Contributor
  • Post published:December 14, 2016
  • Post category:Ankylosing Spondylitis/Rare Disease

Para alguien que vive con una enfermedad crónica progresiva, la vida no es ninguna "caja de bombones." No importa cómo las personas positivas u optimistas son, vivir con el dolor…

Continue Reading Te preguntamos, $100 mil en efectivo o cura para la espondilitis anquilosante?
How to Combat Sjogren’s Cotton Mouth the Patient Worthy Way!

How to Combat Sjogren’s Cotton Mouth the Patient Worthy Way!

  • Post author:EmpatheticBadass
  • Post published:February 18, 2016
  • Post category:Rare Disease/Sjogren's Syndrome

In a post just in time for last year's Sjögren’s Awareness Month, blogger Michelle Traub, who happens to have Sjögren’s herself, offered seven tips she uses to live everyday with a…

Continue Reading How to Combat Sjogren’s Cotton Mouth the Patient Worthy Way!
What Are You Thankful For?
What are you thankful for this Thanksgiving?

What Are You Thankful For?

  • Post author:Patient Worthy Contributor
  • Post published:November 23, 2015
  • Post category:Myasthenia Gravis/Rare Disease

Tis the season when gratitude is in the air (can you smell it?). Wait, that may be the pumpkin pie. Anyway, Thanksgiving is a time of reflection. A time where…

Continue Reading What Are You Thankful For?
We Ask You, $100k in Cash or Ankylosing Spondylitis Cure?

We Ask You, $100k in Cash or Ankylosing Spondylitis Cure?

  • Post author:Alisha Stone
  • Post published:November 5, 2015
  • Post category:Ankylosing Spondylitis/Rare Disease

For anyone living with a progressive chronic illness, life ain’t no “box of chocolates.” No matter how positive or optimistic people are, living with pain and fatigue--day in and day…

Continue Reading We Ask You, $100k in Cash or Ankylosing Spondylitis Cure?
Poll: Do You Have the Ankylosing Spondylitis Support You Need?

Poll: Do You Have the Ankylosing Spondylitis Support You Need?

  • Post author:Patient Worthy Contributor
  • Post published:October 15, 2015
  • Post category:Ankylosing Spondylitis/Rare Disease

Asking for help isn’t always easy for people living with a chronic illness. We don’t want to be defined by our disease, but, at the same time, our diseases can…

Continue Reading Poll: Do You Have the Ankylosing Spondylitis Support You Need?
The FDA Is Supporting These Rare Diseases, Did Yours Make the Cut?

The FDA Is Supporting These Rare Diseases, Did Yours Make the Cut?

  • Post author:Patient Worthy Contributor
  • Post published:August 26, 2015
  • Post category:HAE/Rare Disease

The people have spoken. The Patient-Focused Drug Development Initiative of the Food and Drug Administration (FDA) has announced the selection of diseases it will address during 2016 and 2017. Which…

Continue Reading The FDA Is Supporting These Rare Diseases, Did Yours Make the Cut?
The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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