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A Family in India is Asking for the Government’s Help in Treating Their Son’s Hydrocephalus
source: pixabay.com

A Family in India is Asking for the Government’s Help in Treating Their Son’s Hydrocephalus

  • Post author:Jessica Lynn
  • Post published:May 8, 2023
  • Post category:Hydrocephalus

  Throughout the globe, there are many countries in which rare disease awareness and support are still lacking. While India has made some strides in improving care for people within…

Continue Reading A Family in India is Asking for the Government’s Help in Treating Their Son’s Hydrocephalus
La columna vertebral está conectada al… hueso del ojo?

La columna vertebral está conectada al… hueso del ojo?

  • Post author:Patient Worthy Contributor
  • Post published:August 2, 2016
  • Post category:Ankylosing Spondylitis/Rare Disease

¿Crees que sabes todo lo que hay que saber sobre la espondilitis anquilosante (EA)? Piensa otra vez. Una nueva investigación ha revelado que las personas con AS tienen un mayor…

Continue Reading La columna vertebral está conectada al… hueso del ojo?
Aún no hay un diagnóstico? podría Watson ser la respuesta?

Aún no hay un diagnóstico? podría Watson ser la respuesta?

  • Post author:Patient Worthy Contributor
  • Post published:May 16, 2016
  • Post category:Rare Disease

La edad de las máquinas, estamos en ella! La tecnología se ha hecho cargo. Hace algunas décadas, cuando alguien hablaba de la tecnología, pensado en Orwell novela 1984, las películas…

Continue Reading Aún no hay un diagnóstico? podría Watson ser la respuesta?
Brotherly Love Met With Surprise Visit

Brotherly Love Met With Surprise Visit

  • Post author:Erica Zahn
  • Post published:December 3, 2015
  • Post category:CAPS/Neonatal onset multisystem inflammatory disease/Rare Disease

You may not know Oliver Bailey personally, but he is one special boy. The brother of Tilly Bailey, who has one of the rarest genetic conditions in the world Neonatal-Onset Multisystem…

Continue Reading Brotherly Love Met With Surprise Visit

The Back Bone is Connected to the… Eye Bone?

  • Post author:Patient Worthy Contributor
  • Post published:July 15, 2015
  • Post category:Ankylosing Spondylitis/Rare Disease

Think you know all there is to know about ankylosing spondylitis (AS)? Think again. New research has revealed that people with AS are at a greater risk for having acute anterior…

Continue Reading The Back Bone is Connected to the… Eye Bone?
Still no diagnosis? Could Watson be the answer?

Still no diagnosis? Could Watson be the answer?

  • Post author:Patient Worthy Contributor
  • Post published:June 5, 2015
  • Post category:Rare Disease

Ahh the age of machines, yep we're in it. Technology has taken over. A few decades ago, when someone talked about technology, you thought about Orwell's novel 1984, science fiction movies about machines and artificial intelligence…

Continue Reading Still no diagnosis? Could Watson be the answer?
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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