Three Young People With Chronic Illness Talk About the Challenges They Face
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Three Young People With Chronic Illness Talk About the Challenges They Face

  Three people with an eye on the future talk about their innermost feelings and the fact that their lives may be interrupted at any time by their chronic illness.…

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A Teenager’s Plan to Help her Friend with Diffuse Intrinsic Pontine Glioma Takes Off
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A Teenager’s Plan to Help her Friend with Diffuse Intrinsic Pontine Glioma Takes Off

According to a story from Essex Live, Lily Wythe is a fourteen year old girl who was recently diagnosed with a rare form of brain cancer called diffuse intrinsic pontine…

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How a Community has Rallied Around a Teenage Girl with Glioma
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How a Community has Rallied Around a Teenage Girl with Glioma

When Lily Wythe, a 14-year-old from Eastwood in England, was diagnosed with diffuse pontine glioma (also known as DIPG), her friends and family knew they had to do something to…

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Hartlepool dad’s worldwide birthday card appeal for daughter Lyla O’Donovan, who is facing tenth brain operation

The family of a little girl who is battling health problems after suffering a brain tumour are appealing for people to make her birthday extra special by sending her cards…

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Glioma, a Rare and Aggressive Form of Brain Cancer, Changes Life of 20-Year-Old
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Glioma, a Rare and Aggressive Form of Brain Cancer, Changes Life of 20-Year-Old

Nobody expects a shocking diagnosis for their significant other right before one of the most important days of their lives. Ariona Kryeziu's life was altered significantly when her fiancee, 20-year-old…

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Family of Woman With Spina Bifida is Left Without Answers After Her Preventable Death
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Family of Woman With Spina Bifida is Left Without Answers After Her Preventable Death

According to a story from Yahoo! News, Dorothy Dunnington is beginning to wonder if she will ever fully understand the circumstances surrounding the death of her sister Chrissy, who was…

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Previously Undiscovered Genetic Mutation Causes Intellectual Disability and Macrocephaly
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Previously Undiscovered Genetic Mutation Causes Intellectual Disability and Macrocephaly

According to a story from University at Buffalo, a recent discovery of a new genetic mutation continues to build on decades of research from Dr. Richard Gronostajski, a professor and biochemist…

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A Device May Reduce the Uncertainty Around Shunt Failure For Patients With Hydrocephalus
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A Device May Reduce the Uncertainty Around Shunt Failure For Patients With Hydrocephalus

In a recent news article, the Northwestern Medicine Feinberg School of Medicine has shared details about an experimental device that may have the potential to dramatically improve the treatment of…

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A Young Girl With Hydrocephalus Will Have to Travel Thousands of Miles For Treatment
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A Young Girl With Hydrocephalus Will Have to Travel Thousands of Miles For Treatment

According to a story from the Herald Sun, Matilda Mahon, an eighteen month old girl from Australia, will need to travel to the United States in order to receive treatment…

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Treating Dogs With Spina Bifida Might Help With Treating Humans
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Treating Dogs With Spina Bifida Might Help With Treating Humans

Researchers at UC-Davis Veterinary Medical Teaching Hospital look to utilize dogs and cats to help find rare disease treatments, reported The Daily Beast. Recently, two bulldogs, Darla and Spanky, with…

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Can an App Play Doctor? The Surprising Answer for Hydrocephalus and Parkinson’s
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Can an App Play Doctor? The Surprising Answer for Hydrocephalus and Parkinson’s

A breakthrough app won the Henry Ford Health System’s first artificial intelligence challenge. A team from Israel developed the app to assist in monitoring conditions such as Parkinson’s and hydrocephalus.…

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These Two Procedures Could Change The Way Doctors Treat Hydrocephalus
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These Two Procedures Could Change The Way Doctors Treat Hydrocephalus

A new study comparing two different treatments demonstrates that both could be effective in treating hydrocephalus. This condition is characterized by a buildup of cerebrospinal fluid inside the brain. In…

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Oct. 25 is World Spina Bifida Day: How Can You Help Raise Global Awareness for Neural Tube Defects?
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Oct. 25 is World Spina Bifida Day: How Can You Help Raise Global Awareness for Neural Tube Defects?

A recent announcement from the wonderful World Spina Bifida & Hydrocephalus Day website brought back some memories for me. Even before I became pregnant with my son, I heard about…

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