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rare disease day 2016

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¿Necesita ayuda manejando una enfermedad rara? Hay una aplicación para eso
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¿Necesita ayuda manejando una enfermedad rara? Hay una aplicación para eso

  • Post author:Patient Worthy Contributor
  • Post published:October 27, 2016
  • Post category:Rare Disease

La tecnología actual nos está llevando a nuevas (in)cómodas alturas, a un ritmo que pocos les sorprenderia. Para aquellos que están viviendo con la narcolepsia, este avión no tripulado de…

Continue Reading ¿Necesita ayuda manejando una enfermedad rara? Hay una aplicación para eso
Need Help Managing a Rare Disease? There’s an App for That
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Need Help Managing a Rare Disease? There’s an App for That

  • Post author:Patient Worthy Contributor
  • Post published:March 2, 2016
  • Post category:Rare Disease

Technology today is taking us to new (un)comfortable heights, at a pace few would be surprised by. For those who are living with narcolepsy, this self-piloting drone could be a…

Continue Reading Need Help Managing a Rare Disease? There’s an App for That
#MotivationMonday – 5 quotes that will make you think differently about Rare Diseases

#MotivationMonday – 5 quotes that will make you think differently about Rare Diseases

  • Post author:Patient Worthy Contributor
  • Post published:February 29, 2016
  • Post category:Rare Disease

  This week's Meme Monday is rather special. Our chief editor is on the ground live tweeting from NIH during Rare Disease Day 2016 #RDD2016 - her first thoughts: "HERE, YOU…

Continue Reading #MotivationMonday – 5 quotes that will make you think differently about Rare Diseases
Welcome to Rare Disease Day 2016

Welcome to Rare Disease Day 2016

  • Post author:Patient Worthy Contributor
  • Post published:February 29, 2016
  • Post category:Rare Disease

Good day to you PatientWorthians! We can't express to you just how excited we are to be attending this year's Rare Disease Day® at the NIH main campus. As laid out…

Continue Reading Welcome to Rare Disease Day 2016
How To Get Handprints Across America

How To Get Handprints Across America

  • Post author:Patient Worthy Contributor
  • Post published:January 26, 2016
  • Post category:Rare Disease

Rare Disease Day 2016 is almost upon us! Rare Disease Day is an international movement organized by Eurordis and supported by 41 Official Global Partners. Whether official or not- Patient Worthy…

Continue Reading How To Get Handprints Across America
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