• About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW
Click Here To Share Your Story with Spinal Muscular Atrophy (SMA)
Click Here to Read More And Take Action!
Click Here To Share Your Story With MASH

Social Distancing

  1. Home>
  2. Social Distancing
Cerebral Palsy and Social Distancing: Taking it Day by Day
source: pixabay.com

Cerebral Palsy and Social Distancing: Taking it Day by Day

  • Post author:Trudy Horsting
  • Post published:May 1, 2020
  • Post category:Cerebral Palsy

Social distancing sucks for everyone. Even introverts (like myself) are becoming antsy. Similarly, the coronavirus is scary for everyone, even those less likely to be effected by serious illness. However,…

Continue Reading Cerebral Palsy and Social Distancing: Taking it Day by Day
Opinion: Let’s Stop Using the Phrase “Social Distancing”
source: pixabay.com

Opinion: Let’s Stop Using the Phrase “Social Distancing”

  • Post author:Trudy Horsting
  • Post published:April 10, 2020
  • Post category:COVID-19/Rare Disease

Social Distancing Social distancing has been coined as the most surefire way to stop the spread of COVID-19 across the American populace. What is this phrase used to refer to?…

Continue Reading Opinion: Let’s Stop Using the Phrase “Social Distancing”
How to Help Your Children Cope When You’re Coping Yourself

How to Help Your Children Cope When You’re Coping Yourself

  • Post author:Trudy Horsting
  • Post published:April 10, 2020
  • Post category:COVID-19/Rare Disease

No one was given a prep course on how to handle quarantine, especially not with kids. Here are some suggestions to help you get through these unique times, while making…

Continue Reading How to Help Your Children Cope When You’re Coping Yourself
The Positives of Social Distancing: Focusing on What You CAN Do
source: pixabay.com

The Positives of Social Distancing: Focusing on What You CAN Do

  • Post author:Trudy Horsting
  • Post published:March 20, 2020
  • Post category:Rare Disease

Social distancing sucks in so many ways. I'll be the first to admit it. You can feel isolated, alone, stuck, scared. But, there are some upsides to this crazy situation.…

Continue Reading The Positives of Social Distancing: Focusing on What You CAN Do
An Honest Review of Online Therapy for Social Distancing
Source: pixabay.com

An Honest Review of Online Therapy for Social Distancing

  • Post author:Patient Worthy Contributor
  • Post published:March 19, 2020
  • Post category:COVID-19/Rare Disease

As we live through the Great Quarantine of 2020, online therapy may be piquing your interest. The world is in a time of uncertainty, which is psychologically stressful (and isolating),…

Continue Reading An Honest Review of Online Therapy for Social Distancing
The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info