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Teenager’s aHUS Manifests as Lung Bleeding
source: pixabay.com

Teenager’s aHUS Manifests as Lung Bleeding

  • Post author:Jessica Lynn
  • Post published:March 11, 2024
  • Post category:Atypical hemolytic uremic syndrome

An 18-year-old woman in Korea underwent a kidney transplant after developing end-stage kidney disease, for which she had been treated with dialysis. Doctors were unsure of the cause. While the…

Continue Reading Teenager’s aHUS Manifests as Lung Bleeding
The Last Year Brought 3 New Therapies for NMOSD
source: pixabay.com

The Last Year Brought 3 New Therapies for NMOSD

  • Post author:Jessica Lynn
  • Post published:October 27, 2020
  • Post category:Neuromyelitis Optica/Rare Disease

Many patients with rare conditions know that sometimes it can be extremely difficult to find targeted treatment options. In fact, a large number of rare conditions still have no approved…

Continue Reading The Last Year Brought 3 New Therapies for NMOSD
The Unfair Coverage for Rare Disease Drugs
Source: Pixabay

The Unfair Coverage for Rare Disease Drugs

  • Post author:Andres Rovira
  • Post published:December 8, 2017
  • Post category:Cystic Fibrosis

Lilia Zaharieva was a University of Victoria student in her early late twenties when she found herself losing half her leg function due to cystic fibrosis. Walking from class to…

Continue Reading The Unfair Coverage for Rare Disease Drugs
UBC Woman Approved for Life-Saving Drug
Source: Pixabay

UBC Woman Approved for Life-Saving Drug

  • Post author:Andres Rovira
  • Post published:December 6, 2017
  • Post category:Atypical hemolytic uremic syndrome/Timely

Shantee Anaquod has gone from planning the end of her life to planning the rest of her life. After being bed-ridden for over a month with the fatal disease, atypical…

Continue Reading UBC Woman Approved for Life-Saving Drug
Myasthenia Gravis Patients See Relief on the Horizon
Source: Pixabay

Myasthenia Gravis Patients See Relief on the Horizon

  • Post author:Andres Rovira
  • Post published:October 26, 2017
  • Post category:Myasthenia Gravis

Biogen's third quarter earnings report isn't looking good these days, putting an uneasy cloud over the biotech sector as a whole. But there is a light at the end of…

Continue Reading Myasthenia Gravis Patients See Relief on the Horizon
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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