New Podcast Episode: The Intersection of Motherhood and Chronic Illness feat. aHUS Patient Advocate Taylor Coffman
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New Podcast Episode: The Intersection of Motherhood and Chronic Illness feat. aHUS Patient Advocate Taylor Coffman

We are excited to announce that Patient Worthy's award-winning podcast "Wait, How Do You Spell That? A Rare Disease Podcast" is back with a new episode. This week, Colby is…

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The aHUS Foundation has Created a Medical Tracker for atypical Hemolytic Uremic Syndrome Patients

aHUS Tracking Atypical hemolytic uremic syndrome (aHUS) is a rare disease that causes blood clots to form within the small blood vessels in the kidneys. These clots lead to organ damage…

Continue Reading The aHUS Foundation has Created a Medical Tracker for atypical Hemolytic Uremic Syndrome Patients
A New Mutation Causing Atypical Hemolytic Uremic Syndrome Has Been Discovered
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A New Mutation Causing Atypical Hemolytic Uremic Syndrome Has Been Discovered

Researchers have announced their identification of a specific gene mutation that can lead to atypical hemolytic uremic syndrome (aHUS). This gene is called DGKE and it is not a part of…

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Traveling with Atypical Hemolytic Uremic Syndrome: Tips for Patients
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Traveling with Atypical Hemolytic Uremic Syndrome: Tips for Patients

According to a story from ahusnews.com, traveling with atypical hemolytic uremic syndrome (aHUS) takes some extra preparation and planning ahead. This syndrome can affect multiple organ systems and especially the…

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This Woman is the First Ever Patient to Have Both aHUS and Cobalamin C Deficiency

When the 19-year-old French woman first visited the hospital, she was extremely lethargic. She displayed neurological symptoms. Upon kidney failure, the patient was admitted into the ICU. But soon, doctors…

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Atypical Hemolytic Uremic Syndrome & Pregnancy: Early Diagnosis Means Better Outcomes
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Atypical Hemolytic Uremic Syndrome & Pregnancy: Early Diagnosis Means Better Outcomes

Atypical hemolytic uremic syndrome (aHUS) is a rare condition which can be sparked by pregnancy, although it can also occur without it. Essentially, if you are genetically predisposed to the condition,…

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Alexion’s Ultomiris™ Met the Primary Objective in a Phase 3 Trial of Atypical Hemolytic Uremic Syndrome Patients

Alexion Pharmaceuticals, Inc., a company that is advancing a rare disease pipeline in complement biology, recently issued a series of press releases announcing positive results of a Phase 3 study…

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Recently Approved Drug Ultomiris Performs Well in Atypical Hemolytic Uremic Syndrome Trial
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Recently Approved Drug Ultomiris Performs Well in Atypical Hemolytic Uremic Syndrome Trial

According to a story from statnews.com, the biotechnology company Alexion Pharmaceuticals recently announced that its product Ultomiris, which was recently approved as a treatment for paroxysmal nocturnal hemoglobinuria, was also…

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A Woman With Atypical Hemolytic Uremic Syndrome Was Brought Back From The Brink
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A Woman With Atypical Hemolytic Uremic Syndrome Was Brought Back From The Brink

According to a story from The Chicago Tribune, Darnesha Bankston, age 23, was rushed to the hospital just before Christmas last year with a bunch of severe, life threatening symptoms.…

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