New Ultomiris Formulation Gets Approved for PNH and AHUS
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New Ultomiris Formulation Gets Approved for PNH and AHUS

According to a story from Market Watch, the biopharmaceutical company Alexion Pharmaceuticals, Inc. has recently announced that the US Food and Drug Administration (FDA) has approved a new formulation of…

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The aHUS Foundation has Created a Medical Tracker for atypical Hemolytic Uremic Syndrome Patients

aHUS Tracking Atypical hemolytic uremic syndrome (aHUS) is a rare disease that causes blood clots to form within the small blood vessels in the kidneys. These clots lead to organ damage…

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A New Mutation Causing Atypical Hemolytic Uremic Syndrome Has Been Discovered
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A New Mutation Causing Atypical Hemolytic Uremic Syndrome Has Been Discovered

Researchers have announced their identification of a specific gene mutation that can lead to atypical hemolytic uremic syndrome (aHUS). This gene is called DGKE and it is not a part of…

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Japan Approves ULTOMIRIS for Patients with aHUS
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Japan Approves ULTOMIRIS for Patients with aHUS

  According to a recent press release, Japan just approved ULTOMIRIS (ravulizumab) for patients with atypical hemolytic uremic syndrome (aHUS). Developed by biopharmaceutical company Alexion Pharmaceuticals ("Alexion"), ULTOMIRIS represents a…

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Traveling with Atypical Hemolytic Uremic Syndrome: Tips for Patients
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Traveling with Atypical Hemolytic Uremic Syndrome: Tips for Patients

According to a story from ahusnews.com, traveling with atypical hemolytic uremic syndrome (aHUS) takes some extra preparation and planning ahead. This syndrome can affect multiple organ systems and especially the…

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Her Double Diagnosis: aHUS and Autoimmune Thyroid Disease May Be Related
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Her Double Diagnosis: aHUS and Autoimmune Thyroid Disease May Be Related

In a study published in BMC Pediatrics, researchers have found atypical hemolytic uremic syndrome (aHUS) and autoimmune thyroid disease may not only be a relatively common pair of rare diseases…

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This Woman is the First Ever Patient to Have Both aHUS and Cobalamin C Deficiency

When the 19-year-old French woman first visited the hospital, she was extremely lethargic. She displayed neurological symptoms. Upon kidney failure, the patient was admitted into the ICU. But soon, doctors…

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Study: Ultomiris Resolves Complications of aHUS
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Study: Ultomiris Resolves Complications of aHUS

Ultomiris, a product of Alexion Pharmaceuticals, has recently been studied in a Phase 3 clinical trial. This study was intended to ultomiris' effect on life-threatening complications of atypical hemolytic uremic…

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Atypical Hemolytic Uremic Syndrome & Pregnancy: Early Diagnosis Means Better Outcomes
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Atypical Hemolytic Uremic Syndrome & Pregnancy: Early Diagnosis Means Better Outcomes

Atypical hemolytic uremic syndrome (aHUS) is a rare condition which can be sparked by pregnancy, although it can also occur without it. Essentially, if you are genetically predisposed to the condition,…

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Can This Rare Disease Drug Treat COVID-19?
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Can This Rare Disease Drug Treat COVID-19?

According to a story from Barron's, the biotechnology company Alexion Pharmaceuticals has recently announced plans to test its drug Ultomiris as a potential treatment for COVID-19. As the scientific community…

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Alexion’s Ultomiris™ Met the Primary Objective in a Phase 3 Trial of Atypical Hemolytic Uremic Syndrome Patients

Alexion Pharmaceuticals, Inc., a company that is advancing a rare disease pipeline in complement biology, recently issued a series of press releases announcing positive results of a Phase 3 study…

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Recently Approved Drug Ultomiris Performs Well in Atypical Hemolytic Uremic Syndrome Trial
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Recently Approved Drug Ultomiris Performs Well in Atypical Hemolytic Uremic Syndrome Trial

According to a story from statnews.com, the biotechnology company Alexion Pharmaceuticals recently announced that its product Ultomiris, which was recently approved as a treatment for paroxysmal nocturnal hemoglobinuria, was also…

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A Woman With Atypical Hemolytic Uremic Syndrome Was Brought Back From The Brink
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A Woman With Atypical Hemolytic Uremic Syndrome Was Brought Back From The Brink

According to a story from The Chicago Tribune, Darnesha Bankston, age 23, was rushed to the hospital just before Christmas last year with a bunch of severe, life threatening symptoms.…

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“All is Not Lost”: Singer-Songwriter Reflects on Her Family’s Struggle With aHUS
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“All is Not Lost”: Singer-Songwriter Reflects on Her Family’s Struggle With aHUS

According to a story from the Tennessean, learning that both her husband and daughter had the rare and dangerous disease atypical hemolytic uremic syndrome (aHUS) was devastating for singer-songwriter Cameron…

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Celebrate a Holiday your Kidney will appreciate: World Kidney Month!
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Celebrate a Holiday your Kidney will appreciate: World Kidney Month!

Last week was World Kidney Day! And in fact, the whole month of March is kidney month - so there's no excuse to brush up on some key kidney facts…

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How Much Would You Pay to Stay Alive? Read This Woman’s aHUS Story
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How Much Would You Pay to Stay Alive? Read This Woman’s aHUS Story

According to CBC, Marie-Eve Chainey was on dialysis six out of seven days a week. For 15 years, this was her life. It was a necessary feat to control her…

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Atypical Hemolytic Uremic Syndrome Patients: There’s a new Medicine Coming to the Market!
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Atypical Hemolytic Uremic Syndrome Patients: There’s a new Medicine Coming to the Market!

ChemoCentrx has been working to develop a drug to combat auto-antibody-associated vasculitis (AAV), C3 glomerulopathy (C3G), and atypical hemolytic uremic syndrome (aHUS). Its name- Avacopan. ChemoCentryx has always had a…

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