• About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW
Click Here To Share Your Story with Spinal Muscular Atrophy (SMA)
Click Here to Read More And Take Action!
Click Here To Share Your Story With MASH

steroids

  1. Home>
  2. steroids
Vamorolone Shows Promise for Patients with DMD
stevepb / Pixabay

Vamorolone Shows Promise for Patients with DMD

  • Post author:Jessica Lynn
  • Post published:October 1, 2020
  • Post category:Duchenne Muscular Dystrophy

According to Medical Xpress, there may be a new treatment option for patients with Duchenne muscular dystrophy (DMD). Traditionally, DMD is treated with glucocorticoids. However, these often require high doses…

Continue Reading Vamorolone Shows Promise for Patients with DMD
UK Patients with Addison’s Disease Will be Given Steroid Emergency Card
whitesession / Pixabay

UK Patients with Addison’s Disease Will be Given Steroid Emergency Card

  • Post author:Jessica Lynn
  • Post published:August 25, 2020
  • Post category:Addison’s Disease

Over the last 2 years, the UK has seen 4 deaths and 320 safety incidents related to missing steroid usage, a story from The Independent explains. For patients with Addison's disease,…

Continue Reading UK Patients with Addison’s Disease Will be Given Steroid Emergency Card
ICYMI: This Experimental Drug Saved This ANCA Vasculitis Patient
source: pixabay.com

ICYMI: This Experimental Drug Saved This ANCA Vasculitis Patient

  • Post author:Sunniva Bean
  • Post published:March 5, 2020
  • Post category:Rare Disease/Vasculitis

As originally reported in CBC News, the problem wasn't that Tom Salisbury had a cold. The problem was that it wouldn't go away. No rest and patience were enough and antibiotics…

Continue Reading ICYMI: This Experimental Drug Saved This ANCA Vasculitis Patient
The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info