Addison’s Disease Archives

Photo Courtesy of Sarah Maxwell

Managing a Dual Diagnosis: How Sarah has Survived, and Overcome, Challenges from Addison’s Disease and Stiff Person Syndrome (Pt. 2)

Post author:Jessica Lynn
Post published:February 21, 2023
Post category:Addison's Disease Addison’s Disease Stiff Person Syndrome Stiff-Person Syndrome

Before you read on, make sure to check out Part 1 of Sarah's story. In Part 1, Sarah discusses the traumatic (and life-threatening!) odyssey that led to her eventual Addison's disease diagnosis…

Photo Courtesy of Sarah Maxwell

Managing a Dual Diagnosis: How Sarah Has Survived, and Overcome, Challenges from Addison’s Disease and Stiff Person Syndrome (Pt. 1)

Post author:Jessica Lynn
Post published:February 20, 2023
Post category:Addison's Disease Addison’s Disease Stiff Person Syndrome Stiff-Person Syndrome

When Sarah Williams Maxwell was 18 months old, she was diagnosed with type 1 diabetes (T1D). Outside of managing this condition, Sarah was relatively healthy until 2014, when her diagnostic…

My Rare ID logo

How “My Rare ID” Supports the Rare Disease Community: An Interview with Jeff Lord (Pt. 2)

Post author:Jessica Lynn
Post published:October 6, 2022
Post category:Addison's Disease Addison’s Disease Panhypopituitarism Timely

Before you continue, make sure you've read Part 1 of our interview, where we discussed the Lord family's story and experience with rare disease, and the development of MobiMedQR. This tool, which…

source: unsplash.com

NORD’s Living Rare, Living Stronger Forum: From Bitter to Better

Post author:James Moore
Post published:July 6, 2022
Post category:Addison’s Disease Lyme Disease Timely

The National Organization for Rare Disorders (NORD) recently held its Living Rare, Living Stronger Patient and Family Forum on June 26, 2022. This event took place both virtually and in-person…

source: shutterstock

Rare Classroom: Addison’s Disease

Post author:James Moore
Post published:April 8, 2022
Post category:Addison's Disease Addison’s Disease

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most…

From Healthy to Zebra to Unicorn

Post author:Annie-Danielle Grenier
Post published:November 9, 2021
Post category:Addison’s Disease Autoimmune polyglandular syndrome type II Corneal ectasia

My story starts with me being a normal, healthy kid. Or was I? My parents would’ve said so, and so would I, I think. I just wasn’t very strong or…

stevepb / Pixabay

Isturisa for Cushing’s Disease Raises Adrenal Insufficiency Risk

Post author:Jessica Lynn
Post published:July 20, 2021
Post category:Addison's Disease Addison’s Disease Cushing Disease

Even though some treatments are beneficial for patients, these same treatments can also cause adverse reactions. This seems to be the case for Isturisa (osilodrostat), according to Cushing's Disease News.…

source: pixabay.com

Researchers Identify 9 Genes That Increase Addison’s Disease Risk

Post author:Jessica Lynn
Post published:February 15, 2021
Post category:Addison’s Disease

Researchers have not always understood why some people develop Addison's disease, a rare autoimmune condition affecting the adrenal glands, over others. Now, a new study conducted by Swedish and Norwegian…

source: pixabay.com

One Month Ago, HealthWell Foundation Opened the Adrenal Insufficiency Fund

Post author:Jessica Lynn
Post published:October 19, 2020
Post category:Addison’s Disease

About one month ago, the HealthWell Foundation announced the beginning of the Adrenal Insufficiency Fund. Designed to assist patients with adrenal insufficiency, the fund will grant financial assistance to…

source: pixabay.com

ICYMI: Addison’s Disease: Emergency Cards Issued to Patients with Adrenal Crisis Risk

Post author:Patient Worthy Contributor
Post published:September 29, 2020
Post category:Addison’s Disease

by Lauren Taylor from In The Cloud Copy Adrenal insufficiency, also called Addison’s disease, is a condition in which the body does not produce adequate amounts of certain necessary hormones.…

whitesession / Pixabay

UK Patients with Addison’s Disease Will be Given Steroid Emergency Card

Post author:Jessica Lynn
Post published:August 25, 2020
Post category:Addison’s Disease

Over the last 2 years, the UK has seen 4 deaths and 320 safety incidents related to missing steroid usage, a story from The Independent explains. For patients with Addison's disease,…

source: pixabay.com

Hope of a Cure vs. the Fear of the Unknown: Participating in a Clinical Trial

Post author:Octavia Walker
Post published:March 5, 2020
Post category:Addison’s Disease Merkel cell cancer

Clinical trials are an opportunity for patients to try new treatments and medicines that offer the potential to improve or extend their lives. The number of clinical trials have…

source: pixabay.com

Family Sues Prison Officials After “Deliberate Indifference” in Addison’s-Related Death

Post author:Patient Worthy Contributor
Post published:January 22, 2020
Post category:Addison’s Disease Rare Disease

By Rachel Whetstone from In The Cloud Copy Justin Stufflebean was 27 years old when he died after being taken to Missouri Western Reception, Diagnostic and Correctional Center (WRDCC). He…

source: pixabay.com

Service Dogs Can Make a Difference in the Lives of Those with Addison’s Disease

Post author:Patient Worthy Contributor
Post published:December 17, 2019
Post category:Addison’s Disease Rare Disease

By Caitlin Seida from In The Cloud Copy Medical alert dogs can give their companions a newfound sense of independence and freedom. Enter Bill, a golden retriever owned by Laura…

GabiSanda / Pixabay

An Overview of Diagnosis and Treatment for Addison’s Disease

Post author:James Moore
Post published:May 30, 2019
Post category:Addison’s Disease

A story from apsense.com provides a brief overview of signs, symptoms, diagnosis, and treatment approaches for Addison's disease, a condition also known as primary adrenal insufficiency. It is characterized by…

source: pixabay.com

Addison’s Disease: A Primer – Symptoms, Diagnosis, and Treatment

Post author:Scott Carlson
Post published:May 28, 2019
Post category:Addison’s Disease

A publication at AP Sense outlines some important steps of the early identification and treatment of Addison's disease, a rare condition brought about by the body's underproduction of certain hormones.…

Researchers in Sweden Studied 116,330 Twins and This is What They Discovered About Autoimmune Diseases

Post author:Rose Duesterwald
Post published:April 1, 2019
Post category:Addison’s Disease Graves' Disease HashimotoÛªs thyroiditis

According to a recent article from EurekAlert!, researchers used data from the Swedish Twin Registry and found that most of the 7 diseases they were studying were inherited. The second finding…

paulbr75 / Pixabay

When Anorexia was Actually Addison’s Disease

Post author:Ellen Johnson
Post published:August 2, 2018
Post category:Addison’s Disease

A Missouri girl was diagnosed with Addison's disease after being first diagnosed with anorexia. Eventually she ended up in the hospital with headaches, vomiting and stroke-like symptoms. Addison's disease is…

Source: https://pixabay.com/en/forking-road-split-road-travel-839830/

Jon’s Adrenoleukodystrophy Journey

Post author:Rebekah
Post published:July 30, 2018
Post category:Addison's Disease Addison’s Disease Adrenoleukodystrophy Rare Disease

I met Jon at the 2018 United Leukodystrophy Foundation Conference and had the privilege of learning his and his family's story. Jon was born in Wisconsin in 1992, joining the…

Source: Pixabay

Blood Test Could Have Saved the Life of a Boy With Addison’s Disease

Post author:James Moore
Post published:May 16, 2018
Post category:Addison’s Disease

According to a story from the Hereford Times, a combination of misdiagnosis and a critical mistake to forgo a simple blood test led to the tragic death of Callum Cartlidge.…

Source: Pixabay

A New QR-Code System Will Improve Emergency Care for Patients With Addison’s Disease

Post author:Anna Hewitt
Post published:April 25, 2018
Post category:Addison’s Disease

Researchers from Newcastle University in the UK have just developed a potentially life-saving device for patients with Addison’s disease, reports Newcastle University. Patients will be given a Quick Response (QR)…

Managing a Dual Diagnosis: How Sarah has Survived, and Overcome, Challenges from Addison’s Disease and Stiff Person Syndrome (Pt. 2)

Managing a Dual Diagnosis: How Sarah Has Survived, and Overcome, Challenges from Addison’s Disease and Stiff Person Syndrome (Pt. 1)

How “My Rare ID” Supports the Rare Disease Community: An Interview with Jeff Lord (Pt. 2)

NORD’s Living Rare, Living Stronger Forum: From Bitter to Better

Rare Classroom: Addison’s Disease

From Healthy to Zebra to Unicorn

Isturisa for Cushing’s Disease Raises Adrenal Insufficiency Risk

Researchers Identify 9 Genes That Increase Addison’s Disease Risk

One Month Ago, HealthWell Foundation Opened the Adrenal Insufficiency Fund

ICYMI: Addison’s Disease: Emergency Cards Issued to Patients with Adrenal Crisis Risk

UK Patients with Addison’s Disease Will be Given Steroid Emergency Card

Hope of a Cure vs. the Fear of the Unknown: Participating in a Clinical Trial

Family Sues Prison Officials After “Deliberate Indifference” in Addison’s-Related Death

Service Dogs Can Make a Difference in the Lives of Those with Addison’s Disease

An Overview of Diagnosis and Treatment for Addison’s Disease

Addison’s Disease: A Primer – Symptoms, Diagnosis, and Treatment

Researchers in Sweden Studied 116,330 Twins and This is What They Discovered About Autoimmune Diseases

When Anorexia was Actually Addison’s Disease

Jon’s Adrenoleukodystrophy Journey

Blood Test Could Have Saved the Life of a Boy With Addison’s Disease

A New QR-Code System Will Improve Emergency Care for Patients With Addison’s Disease

X-Linked Hypophosphatemia: Unnderstanding this Hereditary, Progressive, and Lifelong Condition

Catalyst’s LEMS Aware Podcast Helps Connect Patients

Make a difference, share your experiences and get paid. Opt-in & join Patient Worthy’s panel for paid opportunities such as Surveys, Market Research, Patient Advisory Panels & much more.

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

Let’s Work Together!

Keep Up to Date

Learn More

SIGN UP FOR OUR NEWSLETTER
Email Address