Jon’s Adrenoleukodystrophy Journey
I met Jon at the 2018 United Leukodystrophy Foundation Conference and had the privilege of learning his and his family's story. Jon was born in Wisconsin in 1992, joining the…
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Blood Test Could Have Saved the Life of a Boy With Addison’s Disease
According to a story from the Hereford Times, a combination of misdiagnosis and a critical mistake to forgo a simple blood test led to the tragic death of Callum Cartlidge.…
A New QR-Code System Will Improve Emergency Care for Patients With Addison’s Disease
Researchers from Newcastle University in the UK have just developed a potentially life-saving device for patients with Addison’s disease, reports Newcastle University. Patients will be given a Quick Response (QR)…