Hope of a Cure vs. the Fear of the Unknown: Participating in a Clinical Trial
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Hope of a Cure vs. the Fear of the Unknown: Participating in a Clinical Trial

  Clinical trials are an opportunity for patients to try new treatments and medicines that offer the potential to improve or extend their lives. The number of clinical trials have…

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Family Sues Prison Officials After “Deliberate Indifference” in Addison’s-Related Death
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Family Sues Prison Officials After “Deliberate Indifference” in Addison’s-Related Death

By Rachel Whetstone from In The Cloud Copy Justin Stufflebean was 27 years old when he died after being taken to Missouri Western Reception, Diagnostic and Correctional Center (WRDCC). He…

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Service Dogs Can Make a Difference in the Lives of Those with Addison’s Disease
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Service Dogs Can Make a Difference in the Lives of Those with Addison’s Disease

By Caitlin Seida from In The Cloud Copy Medical alert dogs can give their companions a newfound sense of independence and freedom. Enter Bill, a golden retriever owned by Laura…

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Researchers in Sweden Studied 116,330 Twins and This is What They Discovered About Autoimmune Diseases

  According to a recent article from EurekAlert!, researchers used data from the Swedish Twin Registry and found that most of the 7 diseases they were studying were inherited.  The second finding…

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Jon’s Adrenoleukodystrophy Journey
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Jon’s Adrenoleukodystrophy Journey

I met Jon at the 2018 United Leukodystrophy Foundation Conference and had the privilege of learning his and his family's story. Jon was born in Wisconsin in 1992, joining the…

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A New QR-Code System Will Improve Emergency Care for Patients With Addison’s Disease
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A New QR-Code System Will Improve Emergency Care for Patients With Addison’s Disease

Researchers from Newcastle University in the UK have just developed a potentially life-saving device for patients with Addison’s disease, reports Newcastle University. Patients will be given a Quick Response (QR)…

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