"Fate whispers to the warrior, 'You cannot withstand the storm.' The warrior whispers back, ‘I am the storm.” -Jake Remington This is Jaime Gibbons' favorite quote. While going through her…
Patient Worthy is expanding its platform for sharing patient stories through the production of short-form videos featuring rare disease patients. Recently, we sat down with Margaret, who lives with metastatic…
Netflix recently released an original dark comedy that features a young boy from the UK with Duchenne Muscular Dystrophy whose caregiver (played by Paul Rudd) is new at his job and…
Patient Worthy's UK Partner Breath With Me Strawfie Challenge, wants you to know the basics about cystic fibrosis (CF) and how it affects patients and their families. So they made a rockin'…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
