July 22, 2015 – Patient Worthy

These Smelly Rodents’ Sacrifice for Children Will Warm Your Heart

Post author:Patient Worthy Contributor
Post published:July 22, 2015
Post category:CGD Primary Immunodeficiencies Rare Disease

When you have a rare disease like chronic granulomatous disease (CGD) and have spent the better part of your life being poked and prodded by (hopefully) well-meaning doctors, it’s easy to feel…

Is the New FH Drug Inspired by Star Wars? Who Cares, It Works

Post author:Patient Worthy Contributor
Post published:July 22, 2015
Post category:Familial Hypercholesterolemia Homozygous Familial Hypercholesterolemia Rare Disease

Standing in front of a crowd and talking about your HoFH can be intimidating. Imagine if that crowd was a panel of doctors and scientists with the US Food and…

These Smelly Rodents’ Sacrifice for Children Will Warm Your Heart

Is the New FH Drug Inspired by Star Wars? Who Cares, It Works

Metastatic Breast Cancer: Navigating Grief

Rethinking What It Means to Live With Acromegaly

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

Let’s Work Together!

Keep Up to Date

Learn More